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Domain > www.debra.org
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DNS Resolutions
Date
IP Address
2019-09-26
208.67.87.35
(
ClassC
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2024-10-27
162.211.81.98
(
ClassC
)
Port 443
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data-offset100>!-- Google Tag Manager (noscript) -->noscript>iframe srchttps://www.googletagmanager.com/ns.html?idGTM-N8DKDXHheight0 width0 styledisplay:none;visibility:hidden>/iframe>/noscript>!-- End Google Tag Manager (noscript) -->script typetext/javascript> _linkedin_partner_id 5424244; window._linkedin_data_partner_ids window._linkedin_data_partner_ids || ; window._linkedin_data_partner_ids.push(_linkedin_partner_id); /script>script typetext/javascript> (function(l) { if (!l){window.lintrk function(a,b){window.lintrk.q.push(a,b)}; window.lintrk.q} var s document.getElementsByTagName(script)0; var b document.createElement(script); b.type text/javascript;b.async true; b.src https://snap.licdn.com/li.lms-analytics/insight.min.js; s.parentNode.insertBefore(b, s);})(window.lintrk); /script> noscript> img height1 width1 styledisplay:none; alt srchttps://px.ads.linkedin.com/collect/?pid5424244&fmtgif /> /noscript> a href#main-content classvisually-hidden focusable> Skip to main content /a> div classbody> div classdialog-off-canvas-main-canvas data-off-canvas-main-canvas> div idwrapper> header idheader data-plugin-options{stickyEnabled: true, stickyEnableOnBoxed: true, stickyEnableOnMobile: true, stickyStartAt: 57, stickySetTop: -57px, stickyChangeLogo: true}> div classheader-body> div classheader-container container> div classheader-row> div classheader-column> div classheaderlogo> a href/> img classlogo-large altLogo debra of America width189 height100 src/themes/porto_sub/img/debra-logo.svg> img classlogo-small width158 height70 altLogo debra of America src/themes/porto_sub/img/debra-logo-notag.svg> /a> /div> /div> div classheader-column> div classheader-row> div classheader-nav none> button classbtn header-btn-collapse-nav h-default data-togglecollapse data-target.header-nav-main> i classfa fa-bars>/i> /button> div classheader-nav-main header-nav-main-effect-1 header-nav-main-sub-effect-1 collapse> div classregion region-primary-menu> h2 classvisually-hidden idblock-debra-menu>Debra/h2> nav> ul classnav nav-pills idmainNav> li classmenu-item-about-us has-dropdown> a href/about-us data-drupal-link-system-pathnode/137>About Us/a> ul classdropdown-menu> li> a href/about-us/what-we-do titledebra of America is dedicated to improving the quality of life of all people impacted by Epidermolysis Bullosa (EB) in the U.S. classmenu-item data-drupal-link-system-pathnode/180>What We Do/a> /li> li> a href/about-us/meet-team classmenu-item data-drupal-link-system-pathnode/277>Meet the Team/a> /li> li> a href/about-us/debra-international classmenu-item data-drupal-link-system-pathnode/183>DEBRA International/a> /li> li> a href/about-us/annual-reports-financials classmenu-item data-drupal-link-system-pathnode/181>Annual Reports & Financials/a> /li> li> a href/about-us/media-center classmenu-item data-drupal-link-system-pathnode/185>Media Center/a> /li> li> a href/about-us/contact-us classmenu-item data-drupal-link-system-pathnode/182>Contact Us/a> /li> /ul> /li> li classmenu-item-about-eb has-dropdown> a href/about-eb data-drupal-link-system-pathnode/138>About EB/a> ul classdropdown-menu> li> a href/about-eb/eb-depth classmenu-item data-drupal-link-system-pathnode/272>EB in Depth/a> /li> li> a href/about-eb/clinical-trials-eb classmenu-item data-drupal-link-system-pathnode/252>Clinical Trials/a> /li> li> a href/about-eb/approved-treatments-eb classmenu-item data-drupal-link-system-pathnode/369>Approved Treatments/a> /li> li> a href/about-eb/personal-eb-stories classmenu-item data-drupal-link-system-pathnode/259>Personal Stories/a> /li> li> a href/about-eb/video-stories classmenu-item data-drupal-link-system-pathnode/389>Video Stories/a> /li> li> a href/about-eb/news-blog classmenu-item data-drupal-link-system-pathnode/365>News & Blog/a> /li> /ul> /li> li classmenu-item-how-to has-dropdown> a href/how-to data-drupal-link-system-pathnode/125>How To/a> ul classdropdown-menu> li> a href/how/care-eb-wounds classmenu-item data-drupal-link-system-pathnode/188>Care for Wounds/a> /li> li> a href/how/care-eb-blisters classmenu-item data-drupal-link-system-pathnode/189>Care for Blisters/a> /li> li> a href/how/care-newborns-eb classmenu-item data-drupal-link-system-pathnode/190>Care for Newborns/a> /li> li> a href/how/choose-eb-products classmenu-item data-drupal-link-system-pathnode/191>Choose Products/a> /li> li> a href/how/bathing-eb classmenu-item data-drupal-link-system-pathnode/192>Prepare a Bath/a> /li> li> a href/how/recognize-infections-eb classmenu-item data-drupal-link-system-pathnode/193>Recognize Infection/a> /li> li> a href/how/more-eb-guides classmenu-item data-drupal-link-system-pathnode/278>More EB Guides/a> /li> /ul> /li> li classmenu-item-get-help has-dropdown> a href/get-help data-drupal-link-system-pathnode/97>Get Help/a> ul classdropdown-menu> li> a href/get-help/emergency-care-epidermolysis-bullosa-eb classboldspecial menu-item data-drupal-link-system-pathnode/393>Emergency Care/a> /li> li> a href/get-help/wounds titleWound care is part of the supportive care given to those with Epidermolysis Bullosa (EB). classmenu-item data-drupal-link-system-pathnode/204>Wound Care Distribution/a> /li> li> a href/get-help/nurse classmenu-item data-drupal-link-system-pathnode/200>EB Nurse/a> /li> li> a href/get-help/new-families classmenu-item data-drupal-link-system-pathnode/202>New Families/a> /li> li> a href/get-help/legal-aid classmenu-item data-drupal-link-system-pathnode/201>Legal Aid/a> /li> li> a href/get-help/smile-fund classmenu-item data-drupal-link-system-pathnode/203>Smile Fund/a> /li> li> a href/get-help/mentorships classmenu-item data-drupal-link-system-pathnode/305>Mentorships/a> /li> li> a href/debra-care-conference classmenu-item data-drupal-link-system-pathnode/214>debra Care Conference/a> /li> li> a href/get-help/doctors classmenu-item data-drupal-link-system-pathnode/343>EB Doctor Directory/a> /li> li> a href/get-help/eb-connect classmenu-item data-drupal-link-system-pathnode/306>Connect with Others/a> /li> li classdropdown-submenu> a href/get-help/other-resources classmenu-item data-drupal-link-system-pathnode/279>Other Resources/a> ul classdropdown-menu> li> a href/other-resources/travel classmenu-item data-drupal-link-system-pathnode/210>Travel/a> /li> li> a href/other-resources/school-resources classmenu-item data-drupal-link-system-pathnode/207>School Resources/a> /li> li> a href/other-resources/eb-camps classmenu-item data-drupal-link-system-pathnode/205>EB Camps/a> /li> li> a href/other-resources/eb-cards classmenu-item data-drupal-link-system-pathnode/206>EB Cards/a> /li> li> a href/other-resources/hospital-care-tips classmenu-item data-drupal-link-system-pathnode/290>Hospital Care Tips/a> /li> li> a href/other-resources/bereavement classmenu-item data-drupal-link-system-pathnode/211>Bereavement/a> /li> li> a href/other-resources/medical-supply-companies classmenu-item data-drupal-link-system-pathnode/212>Medical Supply Companies/a> /li> /ul> /li> /ul> /li> li classmenu-item-get-involved has-dropdown> a href/get-involved data-drupal-link-system-pathnode/152>Get Involved/a> ul classdropdown-menu> li> a href/get-involved/ways-donate-fight-eb classmenu-item data-drupal-link-system-pathnode/237>Ways to Give/a> /li> li> a href/get-involved/fundraise-online-fight-eb classmenu-item data-drupal-link-system-pathnode/243>Fundraise/a> /li> li> a href/get-involved/host-supporter-led-event classmenu-item data-drupal-link-system-pathnode/244>Host a Supporter Led Event/a> /li> li> a href/get-involved/government-advocacy-eb classmenu-item data-drupal-link-system-pathnode/250>Government Advocacy/a> /li> li> a href/get-involved/debra-impact-network classmenu-item data-drupal-link-system-pathnode/246>debra Impact Network/a> /li> li> a href/get-involved/internship classmenu-item data-drupal-link-system-pathnode/249>Internship/a> /li> li> a href/get-involved/volunteer classmenu-item data-drupal-link-system-pathnode/248>Volunteer/a> /li> li> a href/get-involved/share-your-story classmenu-item data-drupal-link-system-pathnode/390>Share Your Story/a> /li> li> a hrefhttp://debraofamerica.bigcartel.com/ classmenu-item>Purchase with Purpose/a> /li> li> a href/get-involved/subscribe-emails classmenu-item data-drupal-link-system-pathnode/281>Subscribe to Emails/a> /li> /ul> /li> li classmenu-item-events has-dropdown> a href/events data-drupal-link-system-pathnode/284>Events/a> ul classdropdown-menu> li> a href/events/debra-events titledebra hosts a number of special events throughout the year to fuel our mission and celebrate our supporters, donors, industry partners, and EB. classmenu-item data-drupal-link-system-pathnode/213>debra-Hosted Events/a> /li> li> a href/events/SL-events classmenu-item data-drupal-link-system-pathnode/222>Supporter Led Events/a> /li> li> a href/events/team-debra classmenu-item data-drupal-link-system-pathnode/223>TEAM DEBRA/a> /li> li> a href/events/awareness classmenu-item data-drupal-link-system-pathnode/275>Awareness & Advocacy Events/a> /li> /ul> /li> li classmenu-item-search> span classsearch btn>Search/span> /li> li classmenu-item-donate> a href/donate classdonate btn btn-secondary data-drupal-link-system-pathnode/364>Donate/a> /li> /ul> /nav> /div> /div> /div> /div> /div> /div> /div> /div> /header> div rolemain classmain> div classregion region-slide-show> div classviews-element-container block block-views block-views-blockhome-header-video-block-1 idblock-views-block-home-header-video-block-1> div>div classview view-home-header-video view-id-home_header_video view-display-id-block_1 js-view-dom-id-847276108bf1ac04d06e2d91050f0998f3f08bf4e1e11820fe49ada71e4ebdcb> div classview-content> div classviews-row>div classvideo-bg> div classjs-player idintro-player-container data-plyr-providervimeo data-plyr-embed-id148107991>/div>/div>/div> /div> /div>/div> /div> /div> !--breadcrumbs--> !--content--> div> div classregion region-content> div data-drupal-messages-fallback classhidden>/div>div idblock-porto-sub-content classblock block-system block-system-main-block> article data-history-node-id228 rolearticle about/home classnode node--type-home-page node--view-mode-full> div classnode__content> div classparagraphs-main-wrapper> div classpara-spacing text-block no-bot-space> div classcontent-width-wrapper> h1 classword-rotator-title>Epidermolysis Bullosa (EB) isstrong classinverted inverted-secondary> span classword-rotate data-plugin-options{delay: 2000, animDelay: 300}> span classword-rotate-items> span>painful/span> span>rare/span> span>debilitating/span> span>genetic/span> span>isolating/span> span>pervasive/span> span>agonizing/span> span>expensive/span> span>complex/span> /span> /span>/strong>/h1> /div>/div> div classpara-spacing text-block no-top-space> div classcontent-width-wrapper> p>strong>Epidermolysis Bullosa (EB)/strong>—i>The Worst Disease Youve Never Heard Of /i>—is a rare connective tissue disorder with many genetic and symptomatic variations. All forms share the prominent symptom of extremely fragile skin that blisters and tears with any friction. strong>a classright-arrow-link href/about-eb>Learn more/a>/strong>/p> /div>/div> div classpara-spacing mission-block> div classbg stylebackground-image: url(/sites/default/files/2021-08/Mission_Background_0.jpg);>/div> div classmission-block-content content-width-wrapper> div classcol-main> h2>Leading nonprofit supporting people living with Epidermolysis Bullosa (EB)./h2> div classcopy>p>debra of America is a national nonprofit organization dedicated to improving the lives of people with Epidermolysis Bullosa (EB) through supportive programs and funding the most innovative research for treatments and a cure. Explore further to learn how we help those with EB and their families and how you can get involved in our mission./p>/div> div classmore> a href/about-us>About debra of America/a> /div> /div> div classmission-icon-block> h3>$1.5 Million/h3> div classcopy>The average dollar amount spent each year on direct-to-patient programs and services./div> /div> div classmission-icon-block> h3>U.S. FDA-Approved Treatments/h3> div classcopy>debra of America's work has led to the historic U.S. FDA approval of the first and second treatment for Epidermolysis Bullosa (EB). /div> div classmore>a href/about-eb/approved-treatments-eb>Learn more/a>/div> /div> /div>/div> div classpara-spacing> div classa11y-paragraphs-tabs__wrapper> div classa11y-paragraphs-tabs__section-title heading heading-border heading-middle-border heading-middle-border-center divider-title divider-title> h2>Our Programs & Services/h2> /div> div classa11y-paragraphs-tabs__section-container> div classaccordion-tabs js-tabs> ul roletablist classtabs-tab-list> li rolepresentation> a href#section870-1 roletab idtab870-1 aria-controlssection870-1 aria-selectedtrue classtabs-trigger js-tabs-trigger>Wound Care Distribution/a> /li> li rolepresentation> a href#section870-2 roletab idtab870-2 aria-controlssection870-2 aria-selectedtrue classtabs-trigger js-tabs-trigger>EB Nurse/a> /li> li rolepresentation> a href#section870-3 roletab idtab870-3 aria-controlssection870-3 aria-selectedtrue classtabs-trigger js-tabs-trigger>New Family/a> /li> li rolepresentation> a href#section870-4 roletab idtab870-4 aria-controlssection870-4 aria-selectedtrue classtabs-trigger js-tabs-trigger>Legal Aid/a> /li> li rolepresentation> a href#section870-5 roletab idtab870-5 aria-controlssection870-5 aria-selectedtrue classtabs-trigger js-tabs-trigger>Smile Fund/a> /li> li rolepresentation> a href#section870-6 roletab idtab870-6 aria-controlssection870-6 aria-selectedtrue classtabs-trigger js-tabs-trigger>Mentorship/a> /li> li rolepresentation> a href#section870-7 roletab idtab870-7 aria-controlssection870-7 aria-selectedtrue classtabs-trigger js-tabs-trigger>debra Care Conference/a> /li> /ul> div> section idsection870-1 roletabpanel aria-labelledbytab870-1 classtabs-panel js-tabs-panel tabindex0> div classaccordeon-trigger js-accordeon-trigger aria-controlssection870-1 aria-expandedtrue tabindex0> Wound Care Distribution /div> div classcontent aria-hiddenfalse> div classparagraph paragraph--type--a11y-paragraphs-tab-content paragraph--view-mode--default> div classpara-spacing> div classcontent-width-wrapper> div classtext-with-image image-width-40 image-align-Left has-image> div classimage> img loadinglazy src/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_Support2.jpg?itok8BrHALOl width600 height400 altSupport for Epidermolysis Bullosa typeoffoaf:Image classimage-style-para-text-with-image /> /div> div classtext> div classtext-inner> div classbody> h3>Wound Care Distribution Program/h3>p>debra of America distributes wound care supplies, free of charge, to individuals and families with Epidermolysis Bullosa (EB) in the United States. Supplies include bandages, dressings, ointments, and more. /p>p>a classright-arrow-link hrefhttps://www.debra.org/get-help/wound-care-distribution-program>b>Learn more/b>/a>/p> /div> /div> /div> /div> /div>/div> /div> /div> /section> section idsection870-2 roletabpanel aria-labelledbytab870-2 classtabs-panel js-tabs-panel tabindex0> div classaccordeon-trigger js-accordeon-trigger aria-controlssection870-2 aria-expandedtrue tabindex0> EB Nurse /div> div classcontent aria-hiddenfalse> div classparagraph paragraph--type--a11y-paragraphs-tab-content paragraph--view-mode--default> div classpara-spacing> div classcontent-width-wrapper> div classtext-with-image image-width-40 image-align-Left has-image> div classimage> img loadinglazy src/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_Support3.jpg?itokRw_QYwu4 width600 height400 altSupport for Epidermolysis Bullosa typeoffoaf:Image classimage-style-para-text-with-image /> /div> div classtext> div classtext-inner> div classbody> h3>EB Nurse Educator Program/h3>p>Our EB Nurse Educator is available by phone and email to answer questions and provide guidance to individuals with EB, their family members, the professional community, and the general public./p>p>a classright-arrow-link hrefhttps://www.debra.org/get-help/eb-nurse-educator-program>b>Learn more/b>/a>/p> /div> /div> /div> /div> /div>/div> /div> /div> /section> section idsection870-3 roletabpanel aria-labelledbytab870-3 classtabs-panel js-tabs-panel tabindex0> div classaccordeon-trigger js-accordeon-trigger aria-controlssection870-3 aria-expandedtrue tabindex0> New Family /div> div classcontent aria-hiddenfalse> div classparagraph paragraph--type--a11y-paragraphs-tab-content paragraph--view-mode--default> div classpara-spacing> div classcontent-width-wrapper> div classtext-with-image image-width-40 image-align-Left has-image> div classimage> img loadinglazy src/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_Support4.jpg?itokQ0ngWcat width600 height400 altSupport for Epidermolysis Bullosa typeoffoaf:Image classimage-style-para-text-with-image /> /div> div classtext> div classtext-inner> div classbody> h3>New Family Advocate Program/h3>p>We provide a full support system to the parents and caregivers of a newly diagnosed child with EB, including a free care package with a wide range of wound care products, age-appropriate practical items, and educational information./p>p>strong>a classright-arrow-link href/get-help/new-family-advocate-program>Learn more/a>/strong>/p> /div> /div> /div> /div> /div>/div> /div> /div> /section> section idsection870-4 roletabpanel aria-labelledbytab870-4 classtabs-panel js-tabs-panel tabindex0> div classaccordeon-trigger js-accordeon-trigger aria-controlssection870-4 aria-expandedtrue tabindex0> Legal Aid /div> div classcontent aria-hiddenfalse> div classparagraph paragraph--type--a11y-paragraphs-tab-content paragraph--view-mode--default> div classpara-spacing> div classcontent-width-wrapper> div classtext-with-image image-width-40 image-align-Left has-image> div classimage> img loadinglazy src/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_Support5.jpg?itoktUWMyNP3 width600 height400 altSupport for Epidermolysis Bullosa typeoffoaf:Image classimage-style-para-text-with-image /> /div> div classtext> div classtext-inner> div classbody> h3>Legal Aid Program/h3>p>We provide tools and guidance to help you advocate for yourself and your family when issues arise. For example, has your health insurance denied you coverage, or your local education system not provided your child with the assistance he/she needs? /p>p>strong>a classright-arrow-link href/get-help/legal-aid-program>Learn more/a>/strong>/p> /div> /div> /div> /div> /div>/div> /div> /div> /section> section idsection870-5 roletabpanel aria-labelledbytab870-5 classtabs-panel js-tabs-panel tabindex0> div classaccordeon-trigger js-accordeon-trigger aria-controlssection870-5 aria-expandedtrue tabindex0> Smile Fund /div> div classcontent aria-hiddenfalse> div classparagraph paragraph--type--a11y-paragraphs-tab-content paragraph--view-mode--default> div classpara-spacing> div classcontent-width-wrapper> div classtext-with-image image-width-40 image-align-Left has-image> div classimage> img loadinglazy src/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_Support6.jpg?itok0e7_n3Gr width600 height400 altSupport for Epidermolysis Bullosa typeoffoaf:Image classimage-style-para-text-with-image /> /div> div classtext> div classtext-inner> div classbody> h3>Smile Fund Program/h3>p>We fulfill mini-wishes with the goal of bringing joy to those living with this taxing disease. One Smile Fund winner is selected from a pool of applicants every month./p>p>a classright-arrow-link href/get-help/smile-fund-program>strong>Learn more/strong>/a>/p> /div> /div> /div> /div> /div>/div> /div> /div> /section> section idsection870-6 roletabpanel aria-labelledbytab870-6 classtabs-panel js-tabs-panel tabindex0> div classaccordeon-trigger js-accordeon-trigger aria-controlssection870-6 aria-expandedtrue tabindex0> Mentorship /div> div classcontent aria-hiddenfalse> div classparagraph paragraph--type--a11y-paragraphs-tab-content paragraph--view-mode--default> div classpara-spacing> div classcontent-width-wrapper> div classtext-with-image image-width-40 image-align-Left has-image> div classimage> img loadinglazy src/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_Support7.jpg?itoklSHqYCSd width600 height400 altSupport for Epidermolysis Bullosa typeoffoaf:Image classimage-style-para-text-with-image /> /div> div classtext> div classtext-inner> div classbody> h3>Mentorship Program/h3>p>debra of Americas Mentorship Program offers two separate opportunities for both those living with EB and parents/caregivers./p>p>a classright-arrow-link hrefhttps://www.debra.org/get-help/mentorships>strong>Learn more/strong>/a>/p> /div> /div> /div> /div> /div>/div> /div> /div> /section> section idsection870-7 roletabpanel aria-labelledbytab870-7 classtabs-panel js-tabs-panel tabindex0> div classaccordeon-trigger js-accordeon-trigger aria-controlssection870-7 aria-expandedtrue tabindex0> debra Care Conference /div> div classcontent aria-hiddenfalse> div classparagraph paragraph--type--a11y-paragraphs-tab-content paragraph--view-mode--default> div classpara-spacing> div classcontent-width-wrapper> div classtext-with-image image-width-40 image-align-Left has-image> div classimage> img loadinglazy src/sites/default/files/styles/para_text_with_image/public/2023-07/DEBRA_EpidermolysisBullosa_Support8.jpg?itokc2pfjSIm width600 height400 altSupport for Epidermolysis Bullosa typeoffoaf:Image classimage-style-para-text-with-image /> /div> div classtext> div classtext-inner> div classbody> h3>debra Care Conference (DCC)/h3>p>This multi-day biennial conference is designed specifically for EB families and the professional community to access the best information, discover new ideas, and connect with other EB families from all over the country./p>p>a classright-arrow-link href/debra-hosted-events/debra-care-conference>strong>Learn more/strong>/a>/p> /div> /div> /div> /div> /div>/div> /div> /div> /section> /div> /div> /div> /div> /div> div classpara-spacing background-medium expanding-cards-wrapper has-bg-image>div classbg stylebackground-image: url(/sites/default/files/2023-07/DEBRA_EpidermolysisBullosa_Support9.jpg);>/div> div classcontent-width-wrapper> h2 classtitle>span>Get Involved/span>/h2> div classexpanding-cards> span classcard with-image> span classimage> img loadinglazy src/sites/default/files/styles/landscape/public/2023-07/DEBRA_EpidermolysisBullosa_Support10.jpg?itokhYllRN5M width700 height350 altSupport for Epidermolysis Bullosa typeoffoaf:Image classimage-style-landscape /> /span> span classtext> span classtext-inner> span classtitle>Attend an Event/span> span classbody> p classtext-align-center>Have a good time for a great cause! Check out our upcoming events—both intimate and large—that take place all throughout the year and across the country. /p> span classmore> a href/events> Learn More /a> /span> /span> /span> /span>/span> span classcard with-image> span classimage> img loadinglazy src/sites/default/files/styles/landscape/public/2023-07/DEBRA_EpidermolysisBullosa_Support11.jpg?itokuZg-plVH width700 height350 altSupport for Epidermolysis Bullosa typeoffoaf:Image classimage-style-landscape /> /span> span classtext> span classtext-inner> span classtitle>Donate/span> span classbody> p classtext-align-center>A gift from you directly impacts all people living with Epidermolysis Bullosa (EB), by providing them with crucial programs and services and funding the most innovative research directed at symptom relief and a cure./p> span classmore> a href/node/238> Learn More /a> /span> /span> /span> /span>/span> span classcard with-image> span classimage> img loadinglazy src/sites/default/files/styles/landscape/public/2023-07/DEBRA_EpidermolysisBullosa_Support12.jpg?itokXfiQRcNl width700 height350 altSupport for Epidermolysis Bullosa typeoffoaf:Image classimage-style-landscape /> /span> span classtext> span classtext-inner> span classtitle>Fundraise/span> span classbody> p classtext-align-center>Fuel our mission and support the EB Community with our easy-to-use DIY Online Fundraisers! Set up your personalized, online fundraising page today to get started./p> span classmore> a href/get-involved/fundraise-online-fight-eb> Learn More /a> /span> /span> /span> /span>/span> /div> div classmore> a href/get-involved>More Ways to Get Involved/a> /div> /div>/div> div classpara-spacing divider-title-wrapper> div classcontent-width-wrapper> div classheading heading-border heading-middle-border heading-middle-border-center divider-title> h2>Current Clinical Trials/h2> /div> /div>/div> div classpara-spacing show-block no-top-space no-bot-space> div classcontent-width-wrapper> div classviews-element-container block block-views block-views-blockclinical-trials-block-1 idblock-views-block-clinical-trials-block-1> div>div classgrid four trial cards view view-clinical-trials view-id-clinical_trials view-display-id-block_1 js-view-dom-id-28125ba11adcc7bfd3961819b50d50a5be7748e8973a8bc80c8627ff476bf46d> div classview-content> div classviews-row>a href/clinical-trials/natural-history-study-deb-eye-complications classtrial-item> strong>Natural History Study of DEB Eye Complications/strong> em>Krystal Biotech/em>/a>div classviews-field views-field-edit-node>span classfield-content>/span>/div>/div> div classviews-row>a href/clinical-trials/phase-iiiii-clinical-trial-diacerein-1-ointment-generalized-ebs-ebshield-study classtrial-item> strong>Phase II/III Clinical Trial of Diacerein 1% Ointment for Generalized EBS- The EBShield Study/strong> em>TWi Biotechnology, Inc./em>/a>div classviews-field views-field-edit-node>span classfield-content>/span>/div>/div> div classviews-row>a href/clinical-trials/phase-12a-clinical-trial-agle-102-rdeb classtrial-item> strong>Phase 1/2A Clinical Trial of AGLE-102 for RDEB/strong> em>Aegle Therapeutics/em>/a>div classviews-field views-field-edit-node>span classfield-content>/span>/div>/div> div classviews-row>a href/clinical-trials/cannabinoid-use-symptom-management-online-survey classtrial-item> strong>Cannabinoid Use for Symptom Management Online Survey/strong> em>Northwestern University/em>/a>div classviews-field views-field-edit-node>span classfield-content>/span>/div>/div> div classviews-row>a href/clinical-trials/phase-iii-clinical-trial-abcb5-stem-cells-rdeb classtrial-item> strong>Phase III Clinical Trial of ABCB5+ Stem Cells for RDEB/strong> em>RHEACELL/em>/a>div classviews-field views-field-edit-node>span classfield-content>/span>/div>/div> div classviews-row>a href/clinical-trials/phase-i-clinical-trial-dupilumab-all-eb-types classtrial-item> strong>Phase I Clinical Trial of Dupilumab for All EB Types/strong> em>Northwestern University/em>/a>div classviews-field views-field-edit-node>span classfield-content>/span>/div>/div> div classviews-row>a href/clinical-trials/phase-i-clinical-trial-apr-td011-junctional-or-dystrophic-eb classtrial-item> strong>Phase I Clinical Trial of APR-TD011 for Junctional or Dystrophic EB/strong> em>Relief Therapeutics/em>/a>div classviews-field views-field-edit-node>span classfield-content>/span>/div>/div> div classviews-row>a href/clinical-trials/research-study-developing-novel-artificial-intelligence-patient-app-recognize-scc classtrial-item> strong>Research Study: Developing a Novel Artificial Intelligence Patient App to Recognize SCC in RDEB/strong> em> Northwestern University/em>/a>div classviews-field views-field-edit-node>span classfield-content>/span>/div>/div> /div> div classview-footer> a href/node/252 classright-arrow-link>View All/a> /div> /div>/div> /div> /div>/div>/div> /div>/article> /div>div idblock-mobiletrigger classblock block-block-content block-block-contentb999002b-9d88-4680-96ca-6b4918956684> div classclearfix text-formatted field field--name-body field--type-text-with-summary field--label-hidden field__item>a href/>img classmobile-logo width158 height70 altLogo debra of America src/themes/porto_sub/img/debra-logo-notag.svg>/a>a href/donate classdonate btn btn-secondary>Donate/a>a href# 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This website is for informational purposes, always check with your physician before adopting any medical treatment. | EIN: 11-2519726/p>/div> /div> /div>/div>div classmobile-nav-panel> div classregion region-footer-bottom> h2 classvisually-hidden idblock-debra-3-menu>Debra/h2> nav> ul classnav nav-pills idmainNav> li classmenu-item-about-us has-dropdown> a href/about-us data-drupal-link-system-pathnode/137>About Us/a> ul classdropdown-menu> li> a href/about-us/what-we-do titledebra of America is dedicated to improving the quality of life of all people impacted by Epidermolysis Bullosa (EB) in the U.S. classmenu-item data-drupal-link-system-pathnode/180>What We Do/a> /li> li> a href/about-us/meet-team classmenu-item data-drupal-link-system-pathnode/277>Meet the Team/a> /li> li> a href/about-us/debra-international classmenu-item data-drupal-link-system-pathnode/183>DEBRA International/a> /li> li> a href/about-us/annual-reports-financials classmenu-item data-drupal-link-system-pathnode/181>Annual Reports & Financials/a> /li> li> a href/about-us/media-center classmenu-item data-drupal-link-system-pathnode/185>Media Center/a> /li> li> a href/about-us/contact-us classmenu-item data-drupal-link-system-pathnode/182>Contact Us/a> /li> /ul> /li> li classmenu-item-about-eb has-dropdown> a href/about-eb data-drupal-link-system-pathnode/138>About EB/a> ul classdropdown-menu> li> a href/about-eb/eb-depth classmenu-item data-drupal-link-system-pathnode/272>EB in Depth/a> /li> li> a href/about-eb/clinical-trials-eb classmenu-item data-drupal-link-system-pathnode/252>Clinical Trials/a> /li> li> a href/about-eb/approved-treatments-eb classmenu-item data-drupal-link-system-pathnode/369>Approved Treatments/a> /li> li> a href/about-eb/personal-eb-stories classmenu-item data-drupal-link-system-pathnode/259>Personal Stories/a> /li> li> a href/about-eb/video-stories classmenu-item data-drupal-link-system-pathnode/389>Video Stories/a> /li> li> a href/about-eb/news-blog classmenu-item data-drupal-link-system-pathnode/365>News & Blog/a> /li> /ul> /li> li classmenu-item-how-to has-dropdown> a href/how-to data-drupal-link-system-pathnode/125>How To/a> ul classdropdown-menu> li> a href/how/care-eb-wounds classmenu-item data-drupal-link-system-pathnode/188>Care for Wounds/a> /li> li> a href/how/care-eb-blisters classmenu-item data-drupal-link-system-pathnode/189>Care for Blisters/a> /li> li> a href/how/care-newborns-eb classmenu-item data-drupal-link-system-pathnode/190>Care for Newborns/a> /li> li> a href/how/choose-eb-products classmenu-item data-drupal-link-system-pathnode/191>Choose Products/a> /li> li> a href/how/bathing-eb classmenu-item data-drupal-link-system-pathnode/192>Prepare a Bath/a> /li> li> a href/how/recognize-infections-eb classmenu-item data-drupal-link-system-pathnode/193>Recognize Infection/a> /li> li> a href/how/more-eb-guides classmenu-item data-drupal-link-system-pathnode/278>More EB Guides/a> /li> /ul> /li> li classmenu-item-get-help has-dropdown> a href/get-help data-drupal-link-system-pathnode/97>Get Help/a> ul classdropdown-menu> li> a href/get-help/emergency-care-epidermolysis-bullosa-eb classboldspecial menu-item data-drupal-link-system-pathnode/393>Emergency Care/a> /li> li> a href/get-help/wounds titleWound care is part of the supportive care given to those with Epidermolysis Bullosa (EB). classmenu-item data-drupal-link-system-pathnode/204>Wound Care Distribution/a> /li> li> a href/get-help/nurse classmenu-item data-drupal-link-system-pathnode/200>EB Nurse/a> /li> li> a href/get-help/new-families classmenu-item data-drupal-link-system-pathnode/202>New Families/a> /li> li> a href/get-help/legal-aid classmenu-item data-drupal-link-system-pathnode/201>Legal Aid/a> /li> li> a href/get-help/smile-fund classmenu-item data-drupal-link-system-pathnode/203>Smile Fund/a> /li> li> a href/get-help/mentorships classmenu-item data-drupal-link-system-pathnode/305>Mentorships/a> /li> li> a href/debra-care-conference classmenu-item data-drupal-link-system-pathnode/214>debra Care Conference/a> /li> li> a href/get-help/doctors classmenu-item data-drupal-link-system-pathnode/343>EB Doctor Directory/a> /li> li> a href/get-help/eb-connect classmenu-item data-drupal-link-system-pathnode/306>Connect with Others/a> /li> li classhas-dropdown> a href/get-help/other-resources classmenu-item data-drupal-link-system-pathnode/279>Other Resources/a> /li> /ul> /li> li classmenu-item-get-involved has-dropdown> a href/get-involved data-drupal-link-system-pathnode/152>Get Involved/a> ul classdropdown-menu> li> a href/get-involved/ways-donate-fight-eb classmenu-item data-drupal-link-system-pathnode/237>Ways to Give/a> /li> li> a href/get-involved/fundraise-online-fight-eb classmenu-item data-drupal-link-system-pathnode/243>Fundraise/a> /li> li> a href/get-involved/host-supporter-led-event classmenu-item data-drupal-link-system-pathnode/244>Host a Supporter Led Event/a> /li> li> a href/get-involved/government-advocacy-eb classmenu-item data-drupal-link-system-pathnode/250>Government Advocacy/a> /li> li> a href/get-involved/debra-impact-network classmenu-item data-drupal-link-system-pathnode/246>debra Impact Network/a> /li> li> a href/get-involved/internship classmenu-item data-drupal-link-system-pathnode/249>Internship/a> /li> li> a href/get-involved/volunteer classmenu-item data-drupal-link-system-pathnode/248>Volunteer/a> /li> li> a href/get-involved/share-your-story classmenu-item data-drupal-link-system-pathnode/390>Share Your Story/a> /li> li> a hrefhttp://debraofamerica.bigcartel.com/ classmenu-item>Purchase with Purpose/a> /li> li> a href/get-involved/subscribe-emails classmenu-item data-drupal-link-system-pathnode/281>Subscribe to Emails/a> /li> /ul> /li> li classmenu-item-events has-dropdown> a href/events data-drupal-link-system-pathnode/284>Events/a> ul classdropdown-menu> li> a href/events/debra-events titledebra hosts a number of special events throughout the year to fuel our mission and celebrate our supporters, donors, industry partners, and EB. classmenu-item data-drupal-link-system-pathnode/213>debra-Hosted Events/a> /li> li> a href/events/SL-events classmenu-item data-drupal-link-system-pathnode/222>Supporter Led Events/a> /li> li> a href/events/team-debra classmenu-item data-drupal-link-system-pathnode/223>TEAM DEBRA/a> /li> li> a href/events/awareness classmenu-item data-drupal-link-system-pathnode/275>Awareness & Advocacy Events/a> /li> /ul> /li> li classmenu-item-search> span classsearch btn>Search/span> /li> li classmenu-item-donate> a href/donate classdonate btn btn-secondary data-drupal-link-system-pathnode/364>Donate/a> /li> /ul> /nav> /div>/div>/div> /div> /div> script typeapplication/json 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