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HTTP/1.1 200 OKDate: Mon, 06 Oct 2025 01:40:47 GMTContent-Type: text/html; charsetUTF-8Transfer-Encoding: chunkedConnection: keep-aliveServer: Cache-Control: must-revalidate, no-cache, privateContent-language: enX-Content-Type-Options: nosniffX-Frame-Options: SAMEORIGINExpires: Sun, 19 Nov 1978 05:00:00 GMTX-Dynamic-Cache: MISSX-Cache: HIT !DOCTYPE html>html langen dirltr prefixcontent: http://purl.org/rss/1.0/modules/content/ dc: http://purl.org/dc/terms/ foaf: http://xmlns.com/foaf/0.1/ og: http://ogp.me/ns# rdfs: http://www.w3.org/2000/01/rdf-schema# schema: http://schema.org/ sioc: http://rdfs.org/sioc/ns# sioct: http://rdfs.org/sioc/types# skos: http://www.w3.org/2004/02/skos/core# xsd: http://www.w3.org/2001/XMLSchema# > head>!-- OneTrust Cookies Consent Notice start for portraitsofprogress.com -->script srchttps://cdn.cookielaw.org/scripttemplates/otSDKStub.js data-document-languagetrue typetext/javascript charsetUTF-8 data-domain-script21227c64-2371-4411-aa3f-58698b36b869 >/script>script typetext/javascript>function OptanonWrapper() { }/script>!-- OneTrust Cookies Consent Notice end for portraitsofprogress.com -->!-- GSC script -->meta namegoogle-site-verification contentwDR2m-5M0nBZeCxErarptdTzEwSRYWNKnX5Mrlc27do />!-- GSC end script --> meta charsetutf-8 />meta namedescription contentPortraits of Progress is an exploration of hemophilia history and lived experiences of patients, caregivers, and professionals impacted by the disorder. />link relcanonical hrefhttps://portraitsofprogress.com/ />link relshortlink hrefhttps://portraitsofprogress.com/ />meta propertyog:site_name contentPortraits of Progress />meta propertyog:url contenthttps://portraitsofprogress.com/node/1 />meta propertyog:title contentPortraits of Progress - Decades of Progress in Hemophilia />meta propertyog:description contentCheck out Portraits of Progress, a virtual exhibition of patients, caregivers and professionals touched by hemophilia, as told through the lens of renowned photographer Rankin. />meta propertyog:image contenthttps://portraitsofprogress.com/sites/default/files/behind-the-scene/PoP-og-image.jpg />meta nametwitter:card contentsummary_large_image />meta nametwitter:description contentCheck out Portraits of Progress, a virtual exhibition of patients, caregivers and professionals touched by hemophilia, as told through the lens of renowned photographer Rankin. />meta nametwitter:title contentPortraits of Progress - Decades of Progress in Hemophilia />meta nametwitter:creator content@CSLBehring />meta nametwitter:url contenthttps://portraitsofprogress.com/node/1 />meta nametwitter:image contenthttps://portraitsofprogress.com/sites/default/files/behind-the-scene/PoP-og-image.jpg />meta nameMobileOptimized contentwidth />meta nameHandheldFriendly contenttrue />meta nameviewport contentwidthdevice-width, initial-scale1.0 />script typetext/javascript data-toolbar-anti-flicker-loading>(function() { const toolbarState sessionStorage.getItem(Drupal.toolbar.toolbarState) ? 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In // instances where a tray is lazy loaded, these styles facilitate the // lazy loaded tray appearing gracefully and without reflow. const styleContent ` .toolbar-loading #` + activeTabId + ` { background-image: linear-gradient(rgba(255, 255, 255, 0.25) 20%, transparent 200%); } .toolbar-loading #` + activeTabId + `-tray { display: block; box-shadow: -1px 0 5px 2px rgb(0 0 0 / 33%); border-right: 1px solid #aaa; background-color: #f5f5f5; z-index: 0; } .toolbar-loading.toolbar-vertical.toolbar-tray-open #` + activeTabId + `-tray { width: 15rem; height: 100vh; } .toolbar-loading.toolbar-horizontal :not(#` + activeTray + `) > .toolbar-lining {opacity: 0}`; const style document.createElement(style); style.textContent styleContent; style.setAttribute(data-toolbar-anti-flicker-loading, true); document.querySelector(head).appendChild(style); if (userButtonMinWidth) { const userButtonStyle document.createElement(style); userButtonStyle.textContent `#toolbar-item-user {min-width: ` + userButtonMinWidth +`px;}` document.querySelector(head).appendChild(userButtonStyle); } } } document.querySelector(html).classList.add(...classesToAdd);})();/script>link relicon href/sites/default/files/favicon_1.ico typeimage/vnd.microsoft.icon /> title>Portraits of Progress | Hemophilia Treatment Evolution/title> link relstylesheet mediaall href/sites/default/files/css/css_fQ-BOtnyzx2rbv-lQNVHXg5A1Nv7Tk7ZYv5Hkwi7Plo.css?delta0&languageen&themecslb&includeeJxdjlEOwjAMQy_UrYfhACjbQlSUNlOdMcrpmTYJGD-WrWdLRoNzjgOBw6gEtJPPDJAwwmiVY7GaSdNrw9Ah3qw4DitqA2kHb5qKfHFHK8MyH_upLjPphd23EoKYifLVSaJ4PkeS30k_V5O6ffkv9XSnZ3gkXhF37bNNi37-F5v4DfEAV3A />link relstylesheet mediaall href/sites/default/files/css/css_PCnAAOmbDS5GMPExfKfxr1Y1dRbpLLoerkdcFQF7zoI.css?delta1&languageen&themecslb&includeeJxdjlEOwjAMQy_UrYfhACjbQlSUNlOdMcrpmTYJGD-WrWdLRoNzjgOBw6gEtJPPDJAwwmiVY7GaSdNrw9Ah3qw4DitqA2kHb5qKfHFHK8MyH_upLjPphd23EoKYifLVSaJ4PkeS30k_V5O6ffkv9XSnZ3gkXhF37bNNi37-F5v4DfEAV3A /> /head> body classpath-frontpage page-node-type-home page-enter> a href#main-content classvisually-hidden focusable skip-link> Skip to main content /a> div idpageCanvas> noscript>iframe srchttps://www.googletagmanager.com/ns.html?idGTM-M7JQFCD height0 width0 styledisplay:none;visibility:hidden>/iframe>/noscript> div classdialog-off-canvas-main-canvas data-off-canvas-main-canvas> div idmySidenav classsidenav> /div> button typebutton classnavbar-toggle > span classsr-only>Toggle navigation/span> span classicon-bar>/span> span classicon-bar>/span> span classicon-bar>/span> /button> div idlayout-container> header idnavbar rolebanner > div classcontainer> div classnavbar-header js-navbar-header> div classcontainer> div classrow> div classnavbar-header__wrapper> div classregion region-navigation> div idblock-cslb-branding classblock block-system block-system-branding-block> a href/ relhome classsite-logo> img src/sites/default/files/Portraits_of_Progress_black_logo.svg altPortraits of Progress - Decades of Progress in Hemophilia /> /a> /div>nav rolenavigation aria-labelledbyblock-cslb-main-menu-menu idblock-cslb-main-menu classblock block-menu navigation menu--main> h2 classvisually-hidden idblock-cslb-main-menu-menu>Main navigation/h2> ul classmenu> li classmenu-item> a href/ data-drupal-link-system-path<front> classis-active>Portrait of Progress/a> /li> li classmenu-item> a href/learn-more-about-gene-therapy-and-hemophilia data-drupal-link-system-pathnode/17>Hemophilia And Gene Therapy/a> /li> li classmenu-item> a href/rankin-and-the-exhibit data-drupal-link-system-pathnode/16>Rankin and the Exhibit/a> /li> li classmenu-item> a href/behind-the-scenes data-drupal-link-system-pathnode/5>Behind the Scenes/a> /li> /ul> /nav> /div> button classmenu-toggle js-menu-toggle aria-controlsmain-nav aria-labelBurger menu button aria-expandedfalse namemenu button> span classicon-bar>/span> span classicon-bar>/span> span classicon-bar>/span> /button> /div> /div> /div> /div> div classnavbar-header__mobile> div classregion region-navigation-mobile> div idblock-sitebranding classblock block-system block-system-branding-block> a href/ relhome classsite-logo> img src/sites/default/files/Portraits_of_Progress_black_logo.svg altHome /> /a> /div>nav rolenavigation aria-labelledbyblock-mainnavigation-menu idblock-mainnavigation classblock block-menu navigation menu--main> h2 classvisually-hidden idblock-mainnavigation-menu>Main navigation/h2> ul classmenu> li classmenu-item> a href/ data-drupal-link-system-path<front> classis-active>Portrait of Progress/a> /li> li classmenu-item> a href/learn-more-about-gene-therapy-and-hemophilia data-drupal-link-system-pathnode/17>Hemophilia And Gene Therapy/a> /li> li classmenu-item> a href/rankin-and-the-exhibit data-drupal-link-system-pathnode/16>Rankin and the Exhibit/a> /li> li classmenu-item> a href/behind-the-scenes data-drupal-link-system-pathnode/5>Behind the Scenes/a> /li> /ul> /nav> /div> /div> /div> /header> div classhighlighted> div classregion region-highlighted> div data-drupal-messages-fallback classhidden>/div>div classviews-element-container block block-views block-views-blockheader-hero-block-1 idblock-views-block-header-hero-block-1> div classviews-field views-field-nothing>span classfield-content>div classhero-banner roleheading> img classhero-banner__letter -line-1 -left src/themes/custom/cslb/img/hero-banner/letters/line-1-left.svg altPortraits Of Progress> img classhero-banner__letter -line-1 -right src/themes/custom/cslb/img/hero-banner/letters/line-1-right.svg altPortraits Of Progress> img classhero-banner__letter -line-2 -right src/themes/custom/cslb/img/hero-banner/letters/line-2.svg altPortraits Of Progress> img classhero-banner__letter -line-3 -left src/themes/custom/cslb/img/hero-banner/letters/line-3-left.svg altPortraits Of Progress> img classhero-banner__letter -line-3 -right src/themes/custom/cslb/img/hero-banner/letters/line-3-right.svg altPortraits Of Progress> div classhero-banner__content js-animated-block> div classcontent js-content> h1>/h1> div classcontent__intro>p>From the identification of hemophilia A and B in the 1940s to the potential of gene therapies on the horizon, the past 70 years have revolutionized our understanding and treatment of the disease./p>p>As we look to the future, learn how hemophilia and the evolving treatment landscape has impacted the lives of this community./p>p>This is Portraits of Progress – join us as we celebrate how far we’ve come./p>/div> span classcontent__text>Enter Gallery/span> img classcontent__arrow js-content__arrow src/themes/custom/cslb/img/icons/enter-gallery-arrow.svg altPortraits Of Progress> /div> /div> div classhero-banner__img> img src/themes/custom/cslb/img/hero-banner/portraits-of-progress.svg altPortraits Of Progress> /div>/div>/span>/div> /div> /div>/div> div rolemain classmain-container container js-quickedit-main-content> div classrow> section classcol-sm-12> a idmain-content>/a> div classctn-main> div classregion region-content> div idblock-cslb-content classblock block-system block-system-main-block> article data-history-node-id1 about/node/1 classnode node--type-home node--promoted node--view-mode-full> div classnode__content> /div>/article> /div>div classviews-element-container block block-views block-views-blocktimeline-layout-block-1 idblock-views-block-timeline-layout-block-1> div id1940s–1960s classtimeline js-timeline> div classtimeline__wrapper ctn-main> div classtimeline__section-year> div classsection-year__row js-default-items -left-right> div classsection-year js-section-year js-animated-block -no-title> div classsection-year__content> span classyear>1947/span> p>Dr. Alfredo Pavlovsky, a doctor in Buenos Aires, Argentina, distinguishes two types of hemophilia in his lab – A and B./p> /div>/div> div classsection-year js-section-year js-animated-block -has-img -no-title> div classsection-year__img -desktop-only> img loadinglazy src/sites/default/files/timeline/1940s-60s.jpg width1040 height1338 altCSL Behring typeofImage /> span classimg__caption>Image courtesy of CSL Behring/span> /div> div classsection-year__content> span classyear>1952/span> p>Stephen Christmas is diagnosed with hemophilia B, which doctors colloquially refer to as Christmas Disease. Fresh frozen plasma is the only treatment option available, and the average life expectancy is less than 20 years old./p> div classcontent__mobile> div classcontent__img> img loadinglazy src/sites/default/files/timeline/1940s-60s.jpg width1040 height1338 altCSL Behring typeofImage /> span classimg__caption>Image courtesy of CSL Behring/span> /div> div classcontent__text> p>Stephen Christmas is diagnosed with hemophilia B, which doctors colloquially refer to as Christmas Disease. Fresh frozen plasma is the only treatment option available, and the average life expectancy is less than 20 years old./p> /div> /div> /div>/div> /div> div classsection-year__row js-default-items -left> /div>div data-iddan classsection-year__row -is-story -left > div classsection-year js-animated-block > div classsection-year__story js-section-year__story> div classstory__header -before> div classspacer>/div> div classheader js-story-content > span classsection-year__cat>Patient/span> h2>Dan/h2> /div> /div> div classstory__img-video -before> div classsection-year__video -desktop-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306232690112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Dan_video_thumbnail.jpg?itokfv5Fxy3C width500 height281 altWatch video of Dan’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> div classsection-year__img js-story-content> img loadinglazy src/sites/default/files/timeline/dan.jpg width1920 height2487 altRankin portrait of hemophilia patient, Dan typeofImage /> /div> /div> div classstory__content -before> div classspacer>/div> div classsection-year__content js-story-content> p>Dan has experienced the full treatment spectrum for hemophilia, from lyophilized plasma to factor. Now with a young grandson who also has hemophilia, he’s amazed by how far we’ve come and is excited for where the science is headed with gene therapy./p> a href/story/dan>Dan's story/a> /div> /div> div classsection-year__video -mobile-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306232690112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Dan_video_thumbnail.jpg?itokfv5Fxy3C width500 height281 altWatch video of Dan’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> /div> /div>/div> /div> /div>/div> div id1970s classtimeline js-timeline> div classtimeline__wrapper ctn-main> div classtimeline__section-year> div classsection-year__row js-default-items -right> div classsection-year js-section-year js-animated-block -has-img -no-title> div classsection-year__img -desktop-only> img loadinglazy src/sites/default/files/timeline/1970s.jpg width1508 height1158 altGary Bottoms typeofImage /> span classimg__caption>Image courtesy of Gary Bottoms/span> /div> div classsection-year__content> span classyear>1970s/span> p>Factor concentrates in powdered form become available, allowing for home infusions and significant reduction in treatment time./p>hr />p>strong>Researchers pioneer genetic engineering, creating the potential to treat genetic conditions by modifying a person’s genes./strong>/p> div classcontent__mobile> div classcontent__img> img loadinglazy src/sites/default/files/timeline/1970s.jpg width1508 height1158 altGary Bottoms typeofImage /> span classimg__caption>Image courtesy of Gary Bottoms/span> /div> div classcontent__text> p>Factor concentrates in powdered form become available, allowing for home infusions and significant reduction in treatment time./p>hr />p>strong>Researchers pioneer genetic engineering, creating the potential to treat genetic conditions by modifying a person’s genes./strong>/p> /div> /div> /div>/div> /div> div classsection-year__row js-default-items -left> /div>div data-idchristopher classsection-year__row -is-story -left > div classsection-year js-animated-block > div classsection-year__story js-section-year__story> div classstory__header -after> div classspacer>/div> div classheader js-story-content > span classsection-year__cat>Patient/span> h2>Christopher/h2> /div> /div> div classstory__img-video -after> div classsection-year__video -desktop-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306239320112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Chris.jpg?itokgBnfv1Tg width500 height281 altWatch video of Christopher’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> div classsection-year__img js-story-content> img loadinglazy src/sites/default/files/timeline/christopher.jpg width1920 height2474 altRankin portrait of hemophilia patient, Christopher typeofImage /> /div> /div> div classstory__content -after> div classspacer>/div> div classsection-year__content js-story-content> p>Christopher was told he wouldn’t live past age 5 — but after years of health crises, he is hopeful for his future and that of his children due to the advancement of hemophilia treatments./p> a href/story/christopher>Christopher's Story/a> /div> /div> div classsection-year__video -mobile-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306239320112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Chris.jpg?itokgBnfv1Tg width500 height281 altWatch video of Christopher’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> /div> /div>/div> div classsection-year__row js-default-items -left> /div>div data-idsue classsection-year__row -is-story -left > div classsection-year js-animated-block > div classsection-year__story js-section-year__story> div classstory__header -before> div classspacer>/div> div classheader js-story-content > span classsection-year__cat>Healthcare Provider/span> h2>Sue/h2> /div> /div> div classstory__img-video -before> div classsection-year__video -desktop-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306238918112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Sue.jpg?itokPtmxBdau width500 height281 altWatch video of Sue's Story typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> div classsection-year__img js-story-content> img loadinglazy src/sites/default/files/timeline/sue.jpg width1920 height2474 altRankin portrait of hemophilia nurse coordinator, Sue typeofImage /> /div> /div> div classstory__content -before> div classspacer>/div> div classsection-year__content js-story-content> p>Sue, a now-retired nurse coordinator, spent the last three decades on the front lines caring for people with hemophilia./p> a href/story/sue>Sue's story/a> /div> /div> div classsection-year__video -mobile-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306238918112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Sue.jpg?itokPtmxBdau width500 height281 altWatch video of Sue's Story typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> /div> /div>/div> /div> /div>/div> div id1980s classtimeline js-timeline> div classtimeline__wrapper ctn-main> div classtimeline__section-year> div classsection-year__row js-default-items -right> div classsection-year js-section-year js-animated-block -has-img -no-title> div classsection-year__img -desktop-only> img loadinglazy src/sites/default/files/timeline/1980s---Sue.jpg width902 height1181 altSue Geraghty typeofImage /> span classimg__caption>Image courtesy of Sue Geraghty/span> /div> div classsection-year__content> span classyear>1980s/span> p>Scientists successfully clone the Factor VIII and IX genes, paving the way for breakthrough synthetic factor therapies (not derived from human plasma) using recombinant technologies./p>hr />p>It is discovered that much of the human-derived clotting factor had come from blood donations contaminated with blood-borne diseases, such as HIV and hepatitis viruses./p> div classcontent__mobile> div classcontent__img> img loadinglazy src/sites/default/files/timeline/1980s---Sue.jpg width902 height1181 altSue Geraghty typeofImage /> span classimg__caption>Image courtesy of Sue Geraghty/span> /div> div classcontent__text> p>Scientists successfully clone the Factor VIII and IX genes, paving the way for breakthrough synthetic factor therapies (not derived from human plasma) using recombinant technologies./p>hr />p>It is discovered that much of the human-derived clotting factor had come from blood donations contaminated with blood-borne diseases, such as HIV and hepatitis viruses./p> /div> /div> /div>/div> /div> div classsection-year__row js-default-items -left> /div>div data-idying-poi classsection-year__row -is-story -left > div classsection-year js-animated-block > div classsection-year__story js-section-year__story> div classstory__header -after> div classspacer>/div> div classheader js-story-content > span classsection-year__cat>Scientist/span> h2>Ying Poi/h2> /div> /div> div classstory__img-video -after> div classsection-year__video -desktop-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306232581112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Ying-Poi.jpg?itokZXGsALPR width500 height281 altWatch video of Ying Poi’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> div classsection-year__img js-story-content> img loadinglazy src/sites/default/files/timeline/ying-poi.jpg width1920 height2474 altRankin portrait of hemophilia gene therapy scientist, Ying Poi typeofImage /> /div> /div> div classstory__content -after> div classspacer>/div> div classsection-year__content js-story-content> p>As a scientist working in gene therapy, Ying Poi has seen the many advancements of hemophilia treatments firsthand./p> a href/story/ying-poi>Ying Poi's story/a> /div> /div> div classsection-year__video -mobile-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306232581112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Ying-Poi.jpg?itokZXGsALPR width500 height281 altWatch video of Ying Poi’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> /div> /div>/div> /div> /div>/div> div id1990s classtimeline js-timeline> div classtimeline__wrapper ctn-main> div classtimeline__section-year> div classsection-year__row js-default-items -right> div classsection-year js-section-year js-animated-block -has-img -no-title> div classsection-year__img -desktop-only> img loadinglazy src/sites/default/files/2022-05/Thomas-Wilkes%5B54%5D.jpg width646 height414 altThomas Wilkes typeofImage /> span classimg__caption>Image courtesy of Thomas Wilkes/span> /div> div classsection-year__content> span classyear>1990s/span> p>The first recombinant Factor IX products are approved by the US Food and Drug Administration (FDA) and European Medicines Agency (EMA) to treat hemophilia B, leading the way for prophylactic treatment, which dramatically improve patients’ lives./p>hr />p>Hemophilia patient life expectancy improves to 67 years old./p>hr />p>strong>The beginning rounds of in-human hemophilia gene therapy trials are initiated utilizing a variety of methods./strong>/p> div classcontent__mobile> div classcontent__img> img loadinglazy src/sites/default/files/2022-05/Thomas-Wilkes%5B54%5D.jpg width646 height414 altThomas Wilkes typeofImage /> span classimg__caption>Image courtesy of Thomas Wilkes/span> /div> div classcontent__text> p>The first recombinant Factor IX products are approved by the US Food and Drug Administration (FDA) and European Medicines Agency (EMA) to treat hemophilia B, leading the way for prophylactic treatment, which dramatically improve patients’ lives./p>hr />p>Hemophilia patient life expectancy improves to 67 years old./p>hr />p>strong>The beginning rounds of in-human hemophilia gene therapy trials are initiated utilizing a variety of methods./strong>/p> /div> /div> /div>/div> /div> div classsection-year__row js-default-items -right> /div>div data-idadam classsection-year__row -is-story -right > div classsection-year js-animated-block > div classsection-year__story js-section-year__story> div classstory__header -after> div classspacer>/div> div classheader js-story-content > span classsection-year__cat>Patient/span> h2>Adam/h2> /div> /div> div classstory__img-video -after> div classsection-year__video -desktop-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306231113112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Adam.jpg?itokV8xZZ1IP width500 height281 altWatch video of Adam’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> div classsection-year__img js-story-content> img loadinglazy src/sites/default/files/timeline/adam.jpg width1920 height2473 altRankin portrait of hemophilia patient, Adam typeofImage /> /div> /div> div classstory__content -after> div classspacer>/div> div classsection-year__content js-story-content> p>A child of the 90s, Adam felt comfortable engaging in most activities with family and friends thanks to the availability of prophylactic hemophilia treatments./p> a href/story/adam>Adam's Story/a> /div> /div> div classsection-year__video -mobile-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306231113112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Adam.jpg?itokV8xZZ1IP width500 height281 altWatch video of Adam’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> /div> /div>/div> div classsection-year__row js-default-items -left> /div>div data-iddr-klamroth classsection-year__row -is-story -left -main> div classsection-year js-animated-block > div classsection-year__story js-section-year__story> div classstory__header -before> div classspacer>/div> div classheader js-story-content > span classsection-year__cat>Healthcare Provider/span> h2>Dr. Klamroth/h2> /div> /div> div classstory__img-video -before> div classsection-year__video -desktop-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306309252112> img loadinglazy src/sites/default/files/timeline/Dr-Klamroth.jpg width3744 height2106 altWatch video of Dr. Klamroth’s story. typeofImage /> /div> /div> div classsection-year__img js-story-content> img loadinglazy src/sites/default/files/timeline/Dr-Klamroth.jpg width3744 height2106 altWatch video of Dr. Klamroth’s story. typeofImage /> /div> /div> div classstory__content -before> div classspacer>/div> div classsection-year__content js-story-content> p>A leader in the hemophilia medical community, Dr. Klamroth has witnessed several major treatment advancements over the past 25 years and looks forward to what the next 25 years will bring./p> a href/story/dr-klamroth>Dr. Klamroth’s Story/a> /div> /div> div classsection-year__video -mobile-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306309252112> img loadinglazy src/sites/default/files/timeline/Dr-Klamroth.jpg width3744 height2106 altWatch video of Dr. Klamroth’s story. typeofImage /> /div> /div> /div> /div>/div> /div> /div>/div> div id2000s classtimeline js-timeline> div classtimeline__wrapper ctn-main> div classtimeline__section-year> div classsection-year__row js-default-items -right> div classsection-year js-section-year js-animated-block -has-img -no-title> div classsection-year__img -desktop-only> img loadinglazy src/sites/default/files/2022-05/GettyImages-168166202_bw_4x.jpg width1280 height855 altEvidence grows for the potential typeofImage /> /div> div classsection-year__content> span classyear>2000s/span> p>strong>Evidence grows for the potential of adeno-associated virus (AAV) vectors to deliver safe, effective, and lasting genes that produce blood-clotting factor into the body. /strong>/p> div classcontent__mobile> div classcontent__img> img loadinglazy src/sites/default/files/2022-05/GettyImages-168166202_bw_4x.jpg width1280 height855 altEvidence grows for the potential typeofImage /> /div> div classcontent__text> p>strong>Evidence grows for the potential of adeno-associated virus (AAV) vectors to deliver safe, effective, and lasting genes that produce blood-clotting factor into the body. /strong>/p> /div> /div> /div>/div> /div> div classsection-year__row js-default-items -left> /div>div data-idjeron classsection-year__row -is-story -left > div classsection-year js-animated-block > div classsection-year__story js-section-year__story> div classstory__header -before> div classspacer>/div> div classheader js-story-content > span classsection-year__cat>Patient/span> h2>Jeron/h2> /div> /div> div classstory__img-video -before> div classsection-year__video -desktop-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306239215112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Jeron.jpg?itokXe10QJls width500 height281 altWatch video of Jeron’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> div classsection-year__img js-story-content> img loadinglazy src/sites/default/files/timeline/jeron.jpg width1920 height2472 altRankin portrait of hemophilia patient, Jeron typeofImage /> /div> /div> div classstory__content -before> div classspacer>/div> div classsection-year__content js-story-content> p>Though held back from playing sports as a child, Jeron has channeled his energy into being an advocate in the hemophilia community, traveling the world and inspiring others with the condition./p> a href/story/jeron>Jeron's Story/a> /div> /div> div classsection-year__video -mobile-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306239215112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Jeron.jpg?itokXe10QJls width500 height281 altWatch video of Jeron’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> /div> /div>/div> /div> /div>/div> div id2010s classtimeline js-timeline> div classtimeline__wrapper ctn-main> div classtimeline__section-year> div classsection-year__row js-default-items -right> div classsection-year js-section-year js-animated-block -has-img -no-title> div classsection-year__img -desktop-only> img loadinglazy src/sites/default/files/timeline/Jennifer%202.jpg width1530 height1146 altJennifer Mermilliod typeofImage /> span classimg__caption>Image courtesy of Jennifer Mermilliod/span> /div> div classsection-year__content> span classyear>2010s/span> p>Long-acting recombinant factor therapies are available offering the hemophilia community additional treatment options./p>hr />p>strong>Late-stage trials for AAV-based gene therapy in hemophilia begin./strong>/p> div classcontent__mobile> div classcontent__img> img loadinglazy src/sites/default/files/timeline/Jennifer%202.jpg width1530 height1146 altJennifer Mermilliod typeofImage /> span classimg__caption>Image courtesy of Jennifer Mermilliod/span> /div> div classcontent__text> p>Long-acting recombinant factor therapies are available offering the hemophilia community additional treatment options./p>hr />p>strong>Late-stage trials for AAV-based gene therapy in hemophilia begin./strong>/p> /div> /div> /div>/div> /div> div classsection-year__row js-default-items -center> /div>div data-idnathan classsection-year__row -is-story -center -main> div classsection-year js-animated-block > div classsection-year__story js-section-year__story> div classstory__header -before> div classspacer>/div> div classheader js-story-content > span classsection-year__cat>Patient/span> h2>Nathan/h2> /div> /div> div classstory__img-video -before> div classsection-year__video -desktop-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306231216112> img loadinglazy src/sites/default/files/timeline/Nathan.jpg width3704 height2084 altWatch video of Nathan’s story. typeofImage /> /div> /div> div classsection-year__img js-story-content> img loadinglazy src/sites/default/files/timeline/Nathan.jpg width3704 height2084 altWatch video of Nathan’s story. typeofImage /> /div> /div> div classstory__content -before> div classspacer>/div> div classsection-year__content js-story-content> p>Nathan credits his happy and full childhood to his mother and his prophy regimen. Now a college student, Nathan’s journey with hemophilia has inspired him to pursue a medical degree./p> a href/story/nathan>Nathan’s Story/a> /div> /div> div classsection-year__video -mobile-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306231216112> img loadinglazy src/sites/default/files/timeline/Nathan.jpg width3704 height2084 altWatch video of Nathan’s story. typeofImage /> /div> /div> /div> /div>/div> div classsection-year__row js-default-items -right> /div>div data-idjennifer classsection-year__row -is-story -right -main> div classsection-year js-animated-block > div classsection-year__story js-section-year__story> div classstory__header -before> div classspacer>/div> div classheader js-story-content > span classsection-year__cat>Caregiver/span> h2>Jennifer/h2> /div> /div> div classstory__img-video -before> div classsection-year__video -desktop-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306234368112> img loadinglazy src/sites/default/files/timeline/Jennifer.jpg width3584 height2016 altWatch video of Jennifer’s story. typeofImage /> /div> /div> div classsection-year__img js-story-content> img loadinglazy src/sites/default/files/timeline/Jennifer.jpg width3584 height2016 altWatch video of Jennifer’s story. typeofImage /> /div> /div> div classstory__content -before> div classspacer>/div> div classsection-year__content js-story-content> p>Having a child with hemophilia added another layer of worry to being a mother, but Jennifer raised her son with resilience, strength, and a dash of gratitude./p> a href/story/jennifer>Jennifer’s Story/a> /div> /div> div classsection-year__video -mobile-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306234368112> img loadinglazy src/sites/default/files/timeline/Jennifer.jpg width3584 height2016 altWatch video of Jennifer’s story. typeofImage /> /div> /div> /div> /div>/div> div classsection-year__row js-default-items -left> /div>div data-idstormy classsection-year__row -is-story -left > div classsection-year js-animated-block > div classsection-year__story js-section-year__story> div classstory__header -after> div classspacer>/div> div classheader js-story-content > span classsection-year__cat>Patient/Caregiver/span> h2>Stormy/h2> /div> /div> div classstory__img-video -after> div classsection-year__video -desktop-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306236644112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Stormy.jpg?itokn2uVeFOk width500 height281 altWatch video of Stormy’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> div classsection-year__img js-story-content> img loadinglazy src/sites/default/files/timeline/stormy.jpg width1920 height2474 altRankin portrait of hemophilia patient and caregiver, Stormy typeofImage /> /div> /div> div classstory__content -after> div classspacer>/div> div classsection-year__content js-story-content> p>As a woman with hemophilia and a caregiver to a son with hemophilia, Stormy has made it her mission to educate others, advocating for men and women alike in the hemophilia community./p> a href/story/stormy>Stormy's story/a> /div> /div> div classsection-year__video -mobile-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306236644112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Stormy.jpg?itokn2uVeFOk width500 height281 altWatch video of Stormy’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> /div> /div>/div> /div> /div>/div> div id2020s classtimeline js-timeline> div classtimeline__wrapper ctn-main> div classtimeline__section-year> div classsection-year__row js-default-items -right> div classsection-year js-section-year js-animated-block -has-img -no-title> div classsection-year__img -desktop-only> img loadinglazy src/sites/default/files/timeline/2020s---Mike-Hargett.jpg width986 height1324 altMike Hargett typeofImage /> span classimg__caption>Image courtesy of Mike Hargett/span> /div> div classsection-year__content> span classyear>2020s/span> p>strong>Gene therapy trials in hemophilia continue and show promise in potentially decreasing annualized bleeding rates and use of replacement therapy./strong>/p>hr />p>strong>The U.S. Food and Drug Administration (FDA) approves gene therapies for the treatment of hemophilia B (2022 and 2024) and hemophilia A (2023)./strong>/p> div classcontent__mobile> div classcontent__img> img loadinglazy src/sites/default/files/timeline/2020s---Mike-Hargett.jpg width986 height1324 altMike Hargett typeofImage /> span classimg__caption>Image courtesy of Mike Hargett/span> /div> div classcontent__text> p>strong>Gene therapy trials in hemophilia continue and show promise in potentially decreasing annualized bleeding rates and use of replacement therapy./strong>/p>hr />p>strong>The U.S. Food and Drug Administration (FDA) approves gene therapies for the treatment of hemophilia B (2022 and 2024) and hemophilia A (2023)./strong>/p> /div> /div> /div>/div> /div> div classsection-year__row js-default-items -right> /div>div data-idwayne classsection-year__row -is-story -right > div classsection-year js-animated-block > div classsection-year__story js-section-year__story> div classstory__header -after> div classspacer>/div> div classheader js-story-content > span classsection-year__cat>Patient/span> h2>Wayne/h2> /div> /div> div classstory__img-video -after> div classsection-year__video -desktop-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306227984112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Wayne.jpg?itokwwEx7her width500 height281 altWatch video of Wayne’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> div classsection-year__img js-story-content> img loadinglazy src/sites/default/files/timeline/wayne.jpg width1920 height2474 altRankin portrait of hemophilia patient, Wayne typeofImage /> /div> /div> div classstory__content -after> div classspacer>/div> div classsection-year__content js-story-content> p>As an advocate for hemophilia for over 40 years, Wayne has experienced the monumental advancements in hemophilia treatments and has committed his life to ensuring a better world for today’s hemophilia community./p> a href/story/wayne>Wayne's story/a> /div> /div> div classsection-year__video -mobile-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306227984112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Wayne.jpg?itokwwEx7her width500 height281 altWatch video of Wayne’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> 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classhighlighted> div classregion region-highlighted> div data-drupal-messages-fallback classhidden>/div>div classviews-element-container block block-views block-views-blockheader-hero-block-1 idblock-views-block-header-hero-block-1> div classviews-field views-field-nothing>span classfield-content>div classhero-banner roleheading> img classhero-banner__letter -line-1 -left src/themes/custom/cslb/img/hero-banner/letters/line-1-left.svg altPortraits Of Progress> img classhero-banner__letter -line-1 -right src/themes/custom/cslb/img/hero-banner/letters/line-1-right.svg altPortraits Of Progress> img classhero-banner__letter -line-2 -right src/themes/custom/cslb/img/hero-banner/letters/line-2.svg altPortraits Of Progress> img classhero-banner__letter -line-3 -left src/themes/custom/cslb/img/hero-banner/letters/line-3-left.svg altPortraits Of Progress> img classhero-banner__letter -line-3 -right src/themes/custom/cslb/img/hero-banner/letters/line-3-right.svg altPortraits Of Progress> div classhero-banner__content js-animated-block> div classcontent js-content> h1>/h1> div classcontent__intro>p>From the identification of hemophilia A and B in the 1940s to the potential of gene therapies on the horizon, the past 70 years have revolutionized our understanding and treatment of the disease./p>p>As we look to the future, learn how hemophilia and the evolving treatment landscape has impacted the lives of this community./p>p>This is Portraits of Progress – join us as we celebrate how far we’ve come./p>/div> span classcontent__text>Enter Gallery/span> img classcontent__arrow js-content__arrow src/themes/custom/cslb/img/icons/enter-gallery-arrow.svg altPortraits Of Progress> /div> /div> div classhero-banner__img> img src/themes/custom/cslb/img/hero-banner/portraits-of-progress.svg altPortraits Of Progress> /div>/div>/span>/div> /div> /div>/div> div rolemain classmain-container container js-quickedit-main-content> div classrow> section classcol-sm-12> a idmain-content>/a> div classctn-main> div classregion region-content> div idblock-cslb-content classblock block-system block-system-main-block> article data-history-node-id1 about/node/1 classnode node--type-home node--promoted node--view-mode-full> div classnode__content> /div>/article> /div>div classviews-element-container block block-views block-views-blocktimeline-layout-block-1 idblock-views-block-timeline-layout-block-1> div id1940s–1960s classtimeline js-timeline> div classtimeline__wrapper ctn-main> div classtimeline__section-year> div classsection-year__row js-default-items -left-right> div classsection-year js-section-year js-animated-block -no-title> div classsection-year__content> span classyear>1947/span> p>Dr. Alfredo Pavlovsky, a doctor in Buenos Aires, Argentina, distinguishes two types of hemophilia in his lab – A and B./p> /div>/div> div classsection-year js-section-year js-animated-block -has-img -no-title> div classsection-year__img -desktop-only> img loadinglazy src/sites/default/files/timeline/1940s-60s.jpg width1040 height1338 altCSL Behring typeofImage /> span classimg__caption>Image courtesy of CSL Behring/span> /div> div classsection-year__content> span classyear>1952/span> p>Stephen Christmas is diagnosed with hemophilia B, which doctors colloquially refer to as Christmas Disease. Fresh frozen plasma is the only treatment option available, and the average life expectancy is less than 20 years old./p> div classcontent__mobile> div classcontent__img> img loadinglazy src/sites/default/files/timeline/1940s-60s.jpg width1040 height1338 altCSL Behring typeofImage /> span classimg__caption>Image courtesy of CSL Behring/span> /div> div classcontent__text> p>Stephen Christmas is diagnosed with hemophilia B, which doctors colloquially refer to as Christmas Disease. Fresh frozen plasma is the only treatment option available, and the average life expectancy is less than 20 years old./p> /div> /div> /div>/div> /div> div classsection-year__row js-default-items -left> /div>div data-iddan classsection-year__row -is-story -left > div classsection-year js-animated-block > div classsection-year__story js-section-year__story> div classstory__header -before> div classspacer>/div> div classheader js-story-content > span classsection-year__cat>Patient/span> h2>Dan/h2> /div> /div> div classstory__img-video -before> div classsection-year__video -desktop-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306232690112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Dan_video_thumbnail.jpg?itokfv5Fxy3C width500 height281 altWatch video of Dan’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> div classsection-year__img js-story-content> img loadinglazy src/sites/default/files/timeline/dan.jpg width1920 height2487 altRankin portrait of hemophilia patient, Dan typeofImage /> /div> /div> div classstory__content -before> div classspacer>/div> div classsection-year__content js-story-content> p>Dan has experienced the full treatment spectrum for hemophilia, from lyophilized plasma to factor. Now with a young grandson who also has hemophilia, he’s amazed by how far we’ve come and is excited for where the science is headed with gene therapy./p> a href/story/dan>Dan's story/a> /div> /div> div classsection-year__video -mobile-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306232690112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Dan_video_thumbnail.jpg?itokfv5Fxy3C width500 height281 altWatch video of Dan’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> /div> /div>/div> /div> /div>/div> div id1970s classtimeline js-timeline> div classtimeline__wrapper ctn-main> div classtimeline__section-year> div classsection-year__row js-default-items -right> div classsection-year js-section-year js-animated-block -has-img -no-title> div classsection-year__img -desktop-only> img loadinglazy src/sites/default/files/timeline/1970s.jpg width1508 height1158 altGary Bottoms typeofImage /> span classimg__caption>Image courtesy of Gary Bottoms/span> /div> div classsection-year__content> span classyear>1970s/span> p>Factor concentrates in powdered form become available, allowing for home infusions and significant reduction in treatment time./p>hr />p>strong>Researchers pioneer genetic engineering, creating the potential to treat genetic conditions by modifying a person’s genes./strong>/p> div classcontent__mobile> div classcontent__img> img loadinglazy src/sites/default/files/timeline/1970s.jpg width1508 height1158 altGary Bottoms typeofImage /> span classimg__caption>Image courtesy of Gary Bottoms/span> /div> div classcontent__text> p>Factor concentrates in powdered form become available, allowing for home infusions and significant reduction in treatment time./p>hr />p>strong>Researchers pioneer genetic engineering, creating the potential to treat genetic conditions by modifying a person’s genes./strong>/p> /div> /div> /div>/div> /div> div classsection-year__row js-default-items -left> /div>div data-idchristopher classsection-year__row -is-story -left > div classsection-year js-animated-block > div classsection-year__story js-section-year__story> div classstory__header -after> div classspacer>/div> div classheader js-story-content > span classsection-year__cat>Patient/span> h2>Christopher/h2> /div> /div> div classstory__img-video -after> div classsection-year__video -desktop-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306239320112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Chris.jpg?itokgBnfv1Tg width500 height281 altWatch video of Christopher’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> div classsection-year__img js-story-content> img loadinglazy src/sites/default/files/timeline/christopher.jpg width1920 height2474 altRankin portrait of hemophilia patient, Christopher typeofImage /> /div> /div> div classstory__content -after> div classspacer>/div> div classsection-year__content js-story-content> p>Christopher was told he wouldn’t live past age 5 — but after years of health crises, he is hopeful for his future and that of his children due to the advancement of hemophilia treatments./p> a href/story/christopher>Christopher's Story/a> /div> /div> div classsection-year__video -mobile-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306239320112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Chris.jpg?itokgBnfv1Tg width500 height281 altWatch video of Christopher’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> /div> /div>/div> div classsection-year__row js-default-items -left> /div>div data-idsue classsection-year__row -is-story -left > div classsection-year js-animated-block > div classsection-year__story js-section-year__story> div classstory__header -before> div classspacer>/div> div classheader js-story-content > span classsection-year__cat>Healthcare Provider/span> h2>Sue/h2> /div> /div> div classstory__img-video -before> div classsection-year__video -desktop-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306238918112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Sue.jpg?itokPtmxBdau width500 height281 altWatch video of Sue's Story typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> div classsection-year__img js-story-content> img loadinglazy src/sites/default/files/timeline/sue.jpg width1920 height2474 altRankin portrait of hemophilia nurse coordinator, Sue typeofImage /> /div> /div> div classstory__content -before> div classspacer>/div> div classsection-year__content js-story-content> p>Sue, a now-retired nurse coordinator, spent the last three decades on the front lines caring for people with hemophilia./p> a href/story/sue>Sue's story/a> /div> /div> div classsection-year__video -mobile-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306238918112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Sue.jpg?itokPtmxBdau width500 height281 altWatch video of Sue's Story typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> /div> /div>/div> /div> /div>/div> div id1980s classtimeline js-timeline> div classtimeline__wrapper ctn-main> div classtimeline__section-year> div classsection-year__row js-default-items -right> div classsection-year js-section-year js-animated-block -has-img -no-title> div classsection-year__img -desktop-only> img loadinglazy src/sites/default/files/timeline/1980s---Sue.jpg width902 height1181 altSue Geraghty typeofImage /> span classimg__caption>Image courtesy of Sue Geraghty/span> /div> div classsection-year__content> span classyear>1980s/span> p>Scientists successfully clone the Factor VIII and IX genes, paving the way for breakthrough synthetic factor therapies (not derived from human plasma) using recombinant technologies./p>hr />p>It is discovered that much of the human-derived clotting factor had come from blood donations contaminated with blood-borne diseases, such as HIV and hepatitis viruses./p> div classcontent__mobile> div classcontent__img> img loadinglazy src/sites/default/files/timeline/1980s---Sue.jpg width902 height1181 altSue Geraghty typeofImage /> span classimg__caption>Image courtesy of Sue Geraghty/span> /div> div classcontent__text> p>Scientists successfully clone the Factor VIII and IX genes, paving the way for breakthrough synthetic factor therapies (not derived from human plasma) using recombinant technologies./p>hr />p>It is discovered that much of the human-derived clotting factor had come from blood donations contaminated with blood-borne diseases, such as HIV and hepatitis viruses./p> /div> /div> /div>/div> /div> div classsection-year__row js-default-items -left> /div>div data-idying-poi classsection-year__row -is-story -left > div classsection-year js-animated-block > div classsection-year__story js-section-year__story> div classstory__header -after> div classspacer>/div> div classheader js-story-content > span classsection-year__cat>Scientist/span> h2>Ying Poi/h2> /div> /div> div classstory__img-video -after> div classsection-year__video -desktop-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306232581112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Ying-Poi.jpg?itokZXGsALPR width500 height281 altWatch video of Ying Poi’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> div classsection-year__img js-story-content> img loadinglazy src/sites/default/files/timeline/ying-poi.jpg width1920 height2474 altRankin portrait of hemophilia gene therapy scientist, Ying Poi typeofImage /> /div> /div> div classstory__content -after> div classspacer>/div> div classsection-year__content js-story-content> p>As a scientist working in gene therapy, Ying Poi has seen the many advancements of hemophilia treatments firsthand./p> a href/story/ying-poi>Ying Poi's story/a> /div> /div> div classsection-year__video -mobile-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306232581112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Ying-Poi.jpg?itokZXGsALPR width500 height281 altWatch video of Ying Poi’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> /div> /div>/div> /div> /div>/div> div id1990s classtimeline js-timeline> div classtimeline__wrapper ctn-main> div classtimeline__section-year> div classsection-year__row js-default-items -right> div classsection-year js-section-year js-animated-block -has-img -no-title> div classsection-year__img -desktop-only> img loadinglazy src/sites/default/files/2022-05/Thomas-Wilkes%5B54%5D.jpg width646 height414 altThomas Wilkes typeofImage /> span classimg__caption>Image courtesy of Thomas Wilkes/span> /div> div classsection-year__content> span classyear>1990s/span> p>The first recombinant Factor IX products are approved by the US Food and Drug Administration (FDA) and European Medicines Agency (EMA) to treat hemophilia B, leading the way for prophylactic treatment, which dramatically improve patients’ lives./p>hr />p>Hemophilia patient life expectancy improves to 67 years old./p>hr />p>strong>The beginning rounds of in-human hemophilia gene therapy trials are initiated utilizing a variety of methods./strong>/p> div classcontent__mobile> div classcontent__img> img loadinglazy src/sites/default/files/2022-05/Thomas-Wilkes%5B54%5D.jpg width646 height414 altThomas Wilkes typeofImage /> span classimg__caption>Image courtesy of Thomas Wilkes/span> /div> div classcontent__text> p>The first recombinant Factor IX products are approved by the US Food and Drug Administration (FDA) and European Medicines Agency (EMA) to treat hemophilia B, leading the way for prophylactic treatment, which dramatically improve patients’ lives./p>hr />p>Hemophilia patient life expectancy improves to 67 years old./p>hr />p>strong>The beginning rounds of in-human hemophilia gene therapy trials are initiated utilizing a variety of methods./strong>/p> /div> /div> /div>/div> /div> div classsection-year__row js-default-items -right> /div>div data-idadam classsection-year__row -is-story -right > div classsection-year js-animated-block > div classsection-year__story js-section-year__story> div classstory__header -after> div classspacer>/div> div classheader js-story-content > span classsection-year__cat>Patient/span> h2>Adam/h2> /div> /div> div classstory__img-video -after> div classsection-year__video -desktop-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306231113112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Adam.jpg?itokV8xZZ1IP width500 height281 altWatch video of Adam’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> div classsection-year__img js-story-content> img loadinglazy src/sites/default/files/timeline/adam.jpg width1920 height2473 altRankin portrait of hemophilia patient, Adam typeofImage /> /div> /div> div classstory__content -after> div classspacer>/div> div classsection-year__content js-story-content> p>A child of the 90s, Adam felt comfortable engaging in most activities with family and friends thanks to the availability of prophylactic hemophilia treatments./p> a href/story/adam>Adam's Story/a> /div> /div> div classsection-year__video -mobile-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306231113112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Adam.jpg?itokV8xZZ1IP width500 height281 altWatch video of Adam’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> /div> /div>/div> div classsection-year__row js-default-items -left> /div>div data-iddr-klamroth classsection-year__row -is-story -left -main> div classsection-year js-animated-block > div classsection-year__story js-section-year__story> div classstory__header -before> div classspacer>/div> div classheader js-story-content > span classsection-year__cat>Healthcare Provider/span> h2>Dr. Klamroth/h2> /div> /div> div classstory__img-video -before> div classsection-year__video -desktop-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306309252112> img loadinglazy src/sites/default/files/timeline/Dr-Klamroth.jpg width3744 height2106 altWatch video of Dr. Klamroth’s story. typeofImage /> /div> /div> div classsection-year__img js-story-content> img loadinglazy src/sites/default/files/timeline/Dr-Klamroth.jpg width3744 height2106 altWatch video of Dr. Klamroth’s story. typeofImage /> /div> /div> div classstory__content -before> div classspacer>/div> div classsection-year__content js-story-content> p>A leader in the hemophilia medical community, Dr. Klamroth has witnessed several major treatment advancements over the past 25 years and looks forward to what the next 25 years will bring./p> a href/story/dr-klamroth>Dr. Klamroth’s Story/a> /div> /div> div classsection-year__video -mobile-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306309252112> img loadinglazy src/sites/default/files/timeline/Dr-Klamroth.jpg width3744 height2106 altWatch video of Dr. Klamroth’s story. typeofImage /> /div> /div> /div> /div>/div> /div> /div>/div> div id2000s classtimeline js-timeline> div classtimeline__wrapper ctn-main> div classtimeline__section-year> div classsection-year__row js-default-items -right> div classsection-year js-section-year js-animated-block -has-img -no-title> div classsection-year__img -desktop-only> img loadinglazy src/sites/default/files/2022-05/GettyImages-168166202_bw_4x.jpg width1280 height855 altEvidence grows for the potential typeofImage /> /div> div classsection-year__content> span classyear>2000s/span> p>strong>Evidence grows for the potential of adeno-associated virus (AAV) vectors to deliver safe, effective, and lasting genes that produce blood-clotting factor into the body. /strong>/p> div classcontent__mobile> div classcontent__img> img loadinglazy src/sites/default/files/2022-05/GettyImages-168166202_bw_4x.jpg width1280 height855 altEvidence grows for the potential typeofImage /> /div> div classcontent__text> p>strong>Evidence grows for the potential of adeno-associated virus (AAV) vectors to deliver safe, effective, and lasting genes that produce blood-clotting factor into the body. /strong>/p> /div> /div> /div>/div> /div> div classsection-year__row js-default-items -left> /div>div data-idjeron classsection-year__row -is-story -left > div classsection-year js-animated-block > div classsection-year__story js-section-year__story> div classstory__header -before> div classspacer>/div> div classheader js-story-content > span classsection-year__cat>Patient/span> h2>Jeron/h2> /div> /div> div classstory__img-video -before> div classsection-year__video -desktop-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306239215112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Jeron.jpg?itokXe10QJls width500 height281 altWatch video of Jeron’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> div classsection-year__img js-story-content> img loadinglazy src/sites/default/files/timeline/jeron.jpg width1920 height2472 altRankin portrait of hemophilia patient, Jeron typeofImage /> /div> /div> div classstory__content -before> div classspacer>/div> div classsection-year__content js-story-content> p>Though held back from playing sports as a child, Jeron has channeled his energy into being an advocate in the hemophilia community, traveling the world and inspiring others with the condition./p> a href/story/jeron>Jeron's Story/a> /div> /div> div classsection-year__video -mobile-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306239215112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Jeron.jpg?itokXe10QJls width500 height281 altWatch video of Jeron’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> /div> /div>/div> /div> /div>/div> div id2010s classtimeline js-timeline> div classtimeline__wrapper ctn-main> div classtimeline__section-year> div classsection-year__row js-default-items -right> div classsection-year js-section-year js-animated-block -has-img -no-title> div classsection-year__img -desktop-only> img loadinglazy src/sites/default/files/timeline/Jennifer%202.jpg width1530 height1146 altJennifer Mermilliod typeofImage /> span classimg__caption>Image courtesy of Jennifer Mermilliod/span> /div> div classsection-year__content> span classyear>2010s/span> p>Long-acting recombinant factor therapies are available offering the hemophilia community additional treatment options./p>hr />p>strong>Late-stage trials for AAV-based gene therapy in hemophilia begin./strong>/p> div classcontent__mobile> div classcontent__img> img loadinglazy src/sites/default/files/timeline/Jennifer%202.jpg width1530 height1146 altJennifer Mermilliod typeofImage /> span classimg__caption>Image courtesy of Jennifer Mermilliod/span> /div> div classcontent__text> p>Long-acting recombinant factor therapies are available offering the hemophilia community additional treatment options./p>hr />p>strong>Late-stage trials for AAV-based gene therapy in hemophilia begin./strong>/p> /div> /div> /div>/div> /div> div classsection-year__row js-default-items -center> /div>div data-idnathan classsection-year__row -is-story -center -main> div classsection-year js-animated-block > div classsection-year__story js-section-year__story> div classstory__header -before> div classspacer>/div> div classheader js-story-content > span classsection-year__cat>Patient/span> h2>Nathan/h2> /div> /div> div classstory__img-video -before> div classsection-year__video -desktop-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306231216112> img loadinglazy src/sites/default/files/timeline/Nathan.jpg width3704 height2084 altWatch video of Nathan’s story. typeofImage /> /div> /div> div classsection-year__img js-story-content> img loadinglazy src/sites/default/files/timeline/Nathan.jpg width3704 height2084 altWatch video of Nathan’s story. typeofImage /> /div> /div> div classstory__content -before> div classspacer>/div> div classsection-year__content js-story-content> p>Nathan credits his happy and full childhood to his mother and his prophy regimen. Now a college student, Nathan’s journey with hemophilia has inspired him to pursue a medical degree./p> a href/story/nathan>Nathan’s Story/a> /div> /div> div classsection-year__video -mobile-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306231216112> img loadinglazy src/sites/default/files/timeline/Nathan.jpg width3704 height2084 altWatch video of Nathan’s story. typeofImage /> /div> /div> /div> /div>/div> div classsection-year__row js-default-items -right> /div>div data-idjennifer classsection-year__row -is-story -right -main> div classsection-year js-animated-block > div classsection-year__story js-section-year__story> div classstory__header -before> div classspacer>/div> div classheader js-story-content > span classsection-year__cat>Caregiver/span> h2>Jennifer/h2> /div> /div> div classstory__img-video -before> div classsection-year__video -desktop-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306234368112> img loadinglazy src/sites/default/files/timeline/Jennifer.jpg width3584 height2016 altWatch video of Jennifer’s story. typeofImage /> /div> /div> div classsection-year__img js-story-content> img loadinglazy src/sites/default/files/timeline/Jennifer.jpg width3584 height2016 altWatch video of Jennifer’s story. typeofImage /> /div> /div> div classstory__content -before> div classspacer>/div> div classsection-year__content js-story-content> p>Having a child with hemophilia added another layer of worry to being a mother, but Jennifer raised her son with resilience, strength, and a dash of gratitude./p> a href/story/jennifer>Jennifer’s Story/a> /div> /div> div classsection-year__video -mobile-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306234368112> img loadinglazy src/sites/default/files/timeline/Jennifer.jpg width3584 height2016 altWatch video of Jennifer’s story. typeofImage /> /div> /div> /div> /div>/div> div classsection-year__row js-default-items -left> /div>div data-idstormy classsection-year__row -is-story -left > div classsection-year js-animated-block > div classsection-year__story js-section-year__story> div classstory__header -after> div classspacer>/div> div classheader js-story-content > span classsection-year__cat>Patient/Caregiver/span> h2>Stormy/h2> /div> /div> div classstory__img-video -after> div classsection-year__video -desktop-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306236644112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Stormy.jpg?itokn2uVeFOk width500 height281 altWatch video of Stormy’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> div classsection-year__img js-story-content> img loadinglazy src/sites/default/files/timeline/stormy.jpg width1920 height2474 altRankin portrait of hemophilia patient and caregiver, Stormy typeofImage /> /div> /div> div classstory__content -after> div classspacer>/div> div classsection-year__content js-story-content> p>As a woman with hemophilia and a caregiver to a son with hemophilia, Stormy has made it her mission to educate others, advocating for men and women alike in the hemophilia community./p> a href/story/stormy>Stormy's story/a> /div> /div> div classsection-year__video -mobile-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306236644112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Stormy.jpg?itokn2uVeFOk width500 height281 altWatch video of Stormy’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> /div> /div>/div> /div> /div>/div> div id2020s classtimeline js-timeline> div classtimeline__wrapper ctn-main> div classtimeline__section-year> div classsection-year__row js-default-items -right> div classsection-year js-section-year js-animated-block -has-img -no-title> div classsection-year__img -desktop-only> img loadinglazy src/sites/default/files/timeline/2020s---Mike-Hargett.jpg width986 height1324 altMike Hargett typeofImage /> span classimg__caption>Image courtesy of Mike Hargett/span> /div> div classsection-year__content> span classyear>2020s/span> p>strong>Gene therapy trials in hemophilia continue and show promise in potentially decreasing annualized bleeding rates and use of replacement therapy./strong>/p>hr />p>strong>The U.S. Food and Drug Administration (FDA) approves gene therapies for the treatment of hemophilia B (2022 and 2024) and hemophilia A (2023)./strong>/p> div classcontent__mobile> div classcontent__img> img loadinglazy src/sites/default/files/timeline/2020s---Mike-Hargett.jpg width986 height1324 altMike Hargett typeofImage /> span classimg__caption>Image courtesy of Mike Hargett/span> /div> div classcontent__text> p>strong>Gene therapy trials in hemophilia continue and show promise in potentially decreasing annualized bleeding rates and use of replacement therapy./strong>/p>hr />p>strong>The U.S. Food and Drug Administration (FDA) approves gene therapies for the treatment of hemophilia B (2022 and 2024) and hemophilia A (2023)./strong>/p> /div> /div> /div>/div> /div> div classsection-year__row js-default-items -right> /div>div data-idwayne classsection-year__row -is-story -right > div classsection-year js-animated-block > div classsection-year__story js-section-year__story> div classstory__header -after> div classspacer>/div> div classheader js-story-content > span classsection-year__cat>Patient/span> h2>Wayne/h2> /div> /div> div classstory__img-video -after> div classsection-year__video -desktop-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306227984112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Wayne.jpg?itokwwEx7her width500 height281 altWatch video of Wayne’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> /div> /div> div classsection-year__img js-story-content> img loadinglazy src/sites/default/files/timeline/wayne.jpg width1920 height2474 altRankin portrait of hemophilia patient, Wayne typeofImage /> /div> /div> div classstory__content -after> div classspacer>/div> div classsection-year__content js-story-content> p>As an advocate for hemophilia for over 40 years, Wayne has experienced the monumental advancements in hemophilia treatments and has committed his life to ensuring a better world for today’s hemophilia community./p> a href/story/wayne>Wayne's story/a> /div> /div> div classsection-year__video -mobile-only> div classvideo__thumbnail js-video__thumbnail js-video -player-icon data-video-id6306227984112> img loadinglazy src/sites/default/files/styles/story_video_thumbnail_500x281/public/timeline/Wayne.jpg?itokwwEx7her width500 height281 altWatch video of Wayne’s story. typeofImage classimage-style-story-video-thumbnail-500x281 /> 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