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DNS Resolutions
Date
IP Address
2019-10-25
192.0.78.198
(
ClassC
)
2024-07-18
192.0.78.132
(
ClassC
)
Port 80
HTTP/1.1 301 Moved PermanentlyServer: nginxDate: Thu, 18 Jul 2024 10:57:30 GMTContent-Type: text/htmlContent-Length: 162Connection: keep-aliveLocation: https://chandlercrews.com/X-ac: 3.sea _atomic_bur BYPASSAlt-Svc: h3:443; ma86400 html>head>title>301 Moved Permanently/title>/head>body>center>h1>301 Moved Permanently/h1>/center>hr>center>nginx/center>/body>/html>
Port 443
HTTP/1.1 200 OKServer: nginxDate: Thu, 18 Jul 2024 10:57:30 GMTContent-Type: text/html; charsetUTF-8Transfer-Encoding: chunkedConnection: keep-aliveStrict-Transport-Security: max-age31536000Vary: Accept-EncodingLast-Modified: Thu, 18 Jul 2024 10:53:59 GMTCache-Control: max-age89, must-revalidateX-nananana: Batcache-HitX-hacker: Want root? 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.site-header-row-container-inner{background:var(--global-palette9);}.site-main-header-inner-wrap{min-height:80px;}.transparent-header #masthead .site-main-header-wrap .site-header-row-container-inner{background:#ffeeff;}#masthead .kadence-sticky-header.item-is-fixed:not(.item-at-start):not(.site-header-row-container):not(.item-hidden-above):not(.site-main-header-wrap), #masthead .kadence-sticky-header.item-is-fixed:not(.item-at-start):not(.item-hidden-above) > .site-header-row-container-inner{background:var(--global-palette9);border-bottom:1px solid var(--global-palette8);}#masthead .kadence-sticky-header.item-is-fixed:not(.item-at-start) .site-branding .site-title, #masthead .kadence-sticky-header.item-is-fixed:not(.item-at-start) .site-branding .site-description{color:var(--global-palette3);}#masthead .kadence-sticky-header.item-is-fixed:not(.item-at-start) .header-menu-container > ul > li > a{color:var(--global-palette3);}#masthead .kadence-sticky-header.item-is-fixed:not(.item-at-start) .mobile-toggle-open-container .menu-toggle-open, #masthead .kadence-sticky-header.item-is-fixed:not(.item-at-start) .search-toggle-open-container .search-toggle-open{color:var(--global-palette3);}#masthead .kadence-sticky-header.item-is-fixed:not(.item-at-start) .header-menu-container > ul > li > a:hover{color:var(--global-palette6);}#masthead .kadence-sticky-header.item-is-fixed:not(.item-at-start) .mobile-toggle-open-container .menu-toggle-open:hover, #masthead .kadence-sticky-header.item-is-fixed:not(.item-at-start) .mobile-toggle-open-container .menu-toggle-open:focus, #masthead .kadence-sticky-header.item-is-fixed:not(.item-at-start) .search-toggle-open-container .search-toggle-open:hover, #masthead .kadence-sticky-header.item-is-fixed:not(.item-at-start) .search-toggle-open-container .search-toggle-open:focus{color:var(--global-palette6);}#masthead .kadence-sticky-header.item-is-fixed:not(.item-at-start) .header-menu-container > ul > li.current-menu-item > a, #masthead .kadence-sticky-header.item-is-fixed:not(.item-at-start) .header-menu-container > ul > li.current_page_item > a{color:var(--global-palette4);}.header-navigationclass*header-navigation-style-underline .header-menu-container.primary-menu-container>ul>li>a:after{width:calc( 100% - 1.5em);}.main-navigation .primary-menu-container > ul > li.menu-item > a{padding-left:calc(1.5em / 2);padding-right:calc(1.5em / 2);padding-top:0.6em;padding-bottom:0.6em;color:var(--global-palette3);}.main-navigation .primary-menu-container > ul > li.menu-item .dropdown-nav-special-toggle{right:calc(1.5em / 2);}.main-navigation .primary-menu-container > ul li.menu-item > a{font-style:normal;font-weight:normal;font-size:13px;letter-spacing:3px;font-family:var(--global-primary-nav-font-family);text-transform:uppercase;}.main-navigation .primary-menu-container > ul > li.menu-item > a:hover{color:#feafad;}.main-navigation .primary-menu-container > ul > li.menu-item.current-menu-item > a{color:#dfc1f2;}.header-navigation .header-menu-container ul ul.sub-menu, .header-navigation .header-menu-container ul ul.submenu{background:var(--global-palette9);box-shadow:0px 2px 13px 0px rgba(0,0,0,0.1);}.header-navigation .header-menu-container ul ul li.menu-item, .header-menu-container ul.menu > li.kadence-menu-mega-enabled > ul > li.menu-item > a{border-bottom:1px none rgba(255,255,255,0.1);}.header-navigation .header-menu-container ul ul li.menu-item > a{width:200px;padding-top:1em;padding-bottom:1em;color:var(--global-palette3);font-size:12px;}.header-navigation .header-menu-container ul ul li.menu-item > a:hover{color:var(--global-palette9);background:#feafad;}.header-navigation .header-menu-container ul ul li.menu-item.current-menu-item > a{color:var(--global-palette4);background:var(--global-palette9);}.mobile-toggle-open-container .menu-toggle-open{color:var(--global-palette5);padding:0.4em 0.6em 0.4em 0.6em;font-size:14px;}.mobile-toggle-open-container .menu-toggle-open.menu-toggle-style-bordered{border:1px solid currentColor;}.mobile-toggle-open-container .menu-toggle-open .menu-toggle-icon{font-size:20px;}.mobile-toggle-open-container .menu-toggle-open:hover, .mobile-toggle-open-container .menu-toggle-open:focus-visible{color:var(--global-palette-highlight);}.mobile-navigation ul li{font-style:normal;font-size:16px;line-height:1;letter-spacing:3px;text-transform:uppercase;}.mobile-navigation ul li a{padding-top:1em;padding-bottom:1em;}.mobile-navigation ul li > a, .mobile-navigation ul li.menu-item-has-children > .drawer-nav-drop-wrap{color:var(--global-palette3);}.mobile-navigation ul li > a:hover, .mobile-navigation ul li.menu-item-has-children > .drawer-nav-drop-wrap:hover{color:var(--global-palette6);}.mobile-navigation ul li.current-menu-item > a, .mobile-navigation ul li.current-menu-item.menu-item-has-children > .drawer-nav-drop-wrap{color:var(--global-palette4);}.mobile-navigation ul li.menu-item-has-children .drawer-nav-drop-wrap, .mobile-navigation ul li:not(.menu-item-has-children) a{border-bottom:1px none rgba(255,255,255,0.1);}.mobile-navigation:not(.drawer-navigation-parent-toggle-true) ul li.menu-item-has-children .drawer-nav-drop-wrap button{border-left:1px none rgba(255,255,255,0.1);}#mobile-drawer .drawer-inner, #mobile-drawer.popup-drawer-layout-fullwidth.popup-drawer-animation-slice .pop-portion-bg, #mobile-drawer.popup-drawer-layout-fullwidth.popup-drawer-animation-slice.pop-animated.show-drawer .drawer-inner{background:var(--global-palette9);}#mobile-drawer .drawer-header .drawer-toggle{padding:0.6em 0.15em 0.6em 0.15em;font-size:24px;}#mobile-drawer .drawer-header .drawer-toggle, #mobile-drawer .drawer-header .drawer-toggle:focus{color:var(--global-palette6);}#mobile-drawer .drawer-header .drawer-toggle:hover, #mobile-drawer .drawer-header .drawer-toggle:focus:hover{color:var(--global-palette1);}.header-social-wrap .header-social-inner-wrap{font-size:1em;gap:0.3em;}.header-social-wrap .header-social-inner-wrap .social-button{color:var(--global-palette3);border:2px none currentColor;border-radius:3px;}.header-social-wrap .header-social-inner-wrap .social-button:hover{color:#feafad;}.search-toggle-open-container .search-toggle-open{background:var(--global-palette9);color:#9192e9;}.search-toggle-open-container .search-toggle-open.search-toggle-style-bordered{border:1px solid currentColor;}.search-toggle-open-container .search-toggle-open .search-toggle-icon{font-size:1em;}.search-toggle-open-container .search-toggle-open:hover, .search-toggle-open-container .search-toggle-open:focus{color:#fe5f53;background:var(--global-palette9);}#search-drawer .drawer-inner .drawer-content form input.search-field, #search-drawer .drawer-inner .drawer-content form .kadence-search-icon-wrap, #search-drawer .drawer-header{color:var(--global-palette3);}#search-drawer .drawer-inner .drawer-content form input.search-field:focus, #search-drawer .drawer-inner .drawer-content form input.search-submit:hover ~ .kadence-search-icon-wrap, #search-drawer .drawer-inner .drawer-content form buttontypesubmit:hover ~ .kadence-search-icon-wrap{color:var(--global-palette3);}#search-drawer .drawer-inner{background:var(--global-palette9);}/* Kadence Footer CSS */.site-middle-footer-inner-wrap{padding-top:0px;padding-bottom:0px;grid-column-gap:0px;grid-row-gap:0px;}.site-middle-footer-inner-wrap .widget{margin-bottom:0px;}.site-middle-footer-inner-wrap .site-footer-section:not(:last-child):after{right:calc(-0px / 2);}.site-bottom-footer-wrap .site-footer-row-container-inner{background:#f7f2ed;font-style:normal;color:var(--global-palette9);}.site-footer .site-bottom-footer-wrap a:where(:not(.button):not(.wp-block-button__link):not(.wp-element-button)){color:var(--global-palette9);}.site-footer .site-bottom-footer-wrap a:where(:not(.button):not(.wp-block-button__link):not(.wp-element-button)):hover{color:var(--global-palette1);}.site-bottom-footer-inner-wrap{padding-top:0px;padding-bottom:0px;grid-column-gap:0px;}.site-bottom-footer-inner-wrap .widget{margin-bottom:0px;}.site-bottom-footer-inner-wrap .widget-area .widget-title{font-style:normal;color:var(--global-palette9);}.site-bottom-footer-inner-wrap .site-footer-section:not(:last-child):after{right:calc(-0px / 2);}#colophon .footer-html{font-style:normal;font-weight:normal;font-size:11px;letter-spacing:2px;text-transform:uppercase;color:var(--global-palette3);}#colophon .site-footer-row-container .site-footer-row .footer-html a{color:var(--global-palette3);}#colophon .site-footer-row-container .site-footer-row .footer-html a:hover{color:var(--global-palette7);}/* Kadence Woo CSS */.entry-hero.product-hero-section .entry-header{min-height:200px;}.product-title .single-category{font-weight:700;font-size:32px;line-height:1.5;color:var(--global-palette3);}.wp-site-blocks .product-hero-section .extra-title{font-weight:700;font-size:32px;line-height:1.5;}body.single-product{background:var(--global-palette9);}.woocommerce ul.products.woo-archive-btn-button .product-action-wrap .button:not(.kb-button), .woocommerce ul.products li.woo-archive-btn-button .button:not(.kb-button), .wc-block-grid__product.woo-archive-btn-button .product-details .wc-block-grid__product-add-to-cart .wp-block-button__link{border:2px none transparent;box-shadow:0px 0px 0px 0px rgba(0,0,0,0.0);}.woocommerce ul.products.woo-archive-btn-button .product-action-wrap .button:not(.kb-button):hover, .woocommerce ul.products li.woo-archive-btn-button .button:not(.kb-button):hover, .wc-block-grid__product.woo-archive-btn-button .product-details .wc-block-grid__product-add-to-cart .wp-block-button__link:hover{box-shadow:0px 0px 0px 0px rgba(0,0,0,0);}/style>link relstylesheet 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hrefhttps://maxcdn.bootstrapcdn.com/font-awesome/4.7.0/css/font-awesome.min.css?ver6.6 mediaall />link relstylesheet idwp-calypso-bridge-masterbar-css hrefhttps://chandlercrews.com/wp-content/mu-plugins/wpcomsh/vendor/automattic/wc-calypso-bridge/store-on-wpcom/assets/css/masterbar.css?ver2.5.3 mediaall />link relstylesheet idsimple-social-icons-font-css hrefhttps://chandlercrews.com/wp-content/plugins/simple-social-icons/css/style.css?ver3.0.2 mediaall />link relstylesheet idkadence-blocks-rowlayout-css hrefhttps://chandlercrews.com/wp-content/plugins/kadence-blocks/dist/style-blocks-rowlayout.css?ver3.2.48 mediaall />link relstylesheet idkadence-blocks-column-css hrefhttps://chandlercrews.com/wp-content/plugins/kadence-blocks/dist/style-blocks-column.css?ver3.2.48 mediaall />style idkadence-blocks-advancedheading-inline-css>.wp-block-kadence-advancedheading mark{background:transparent;border-style:solid;border-width:0}.wp-block-kadence-advancedheading mark.kt-highlight{color:#f76a0c;}.kb-adv-heading-icon{display: inline-flex;justify-content: center;align-items: center;}.single-content .kadence-advanced-heading-wrapper h1, .single-content .kadence-advanced-heading-wrapper h2, .single-content .kadence-advanced-heading-wrapper h3, .single-content .kadence-advanced-heading-wrapper h4, .single-content .kadence-advanced-heading-wrapper h5, .single-content .kadence-advanced-heading-wrapper h6 {margin: 1.5em 0 .5em;}.single-content .kadence-advanced-heading-wrapper+* { margin-top:0;}/style>link relstylesheet idkadence-blocks-advancedbtn-css hrefhttps://chandlercrews.com/wp-content/plugins/kadence-blocks/dist/style-blocks-advancedbtn.css?ver3.2.48 mediaall />link relstylesheet idkadence-blocks-advancedgallery-css hrefhttps://chandlercrews.com/wp-content/plugins/kadence-blocks/dist/style-blocks-advancedgallery.css?ver3.2.48 mediaall />link relstylesheet idkadence-blocks-posts-css hrefhttps://chandlercrews.com/wp-content/plugins/kadence-blocks/dist/style-blocks-posts.css?ver3.2.48 mediaall />link relstylesheet idkadence-blocks-form-css hrefhttps://chandlercrews.com/wp-content/plugins/kadence-blocks/dist/style-blocks-form.css?ver3.2.48 mediaall />link relstylesheet idhello_boho-style-css hrefhttps://chandlercrews.com/wp-content/themes/hello_boho/style.css?ver1_0_0 mediaall />style idkadence-blocks-global-variables-inline-css>:root {--global-kb-font-size-sm:clamp(0.8rem, 0.73rem + 0.217vw, 0.9rem);--global-kb-font-size-md:clamp(1.1rem, 0.995rem + 0.326vw, 1.25rem);--global-kb-font-size-lg:clamp(1.75rem, 1.576rem + 0.543vw, 2rem);--global-kb-font-size-xl:clamp(2.25rem, 1.728rem + 1.63vw, 3rem);--global-kb-font-size-xxl:clamp(2.5rem, 1.456rem + 3.26vw, 4rem);--global-kb-font-size-xxxl:clamp(2.75rem, 0.489rem + 7.065vw, 6rem);}/style>style idkadence_blocks_css-inline-css>.kb-row-layout-wrap.wp-block-kadence-rowlayout.kb-row-layout-id9815_7d85fb-81{margin-top:0px;margin-bottom:0px;}.kb-row-layout-id9815_7d85fb-81 > .kt-row-column-wrap{align-content:center;}:where(.kb-row-layout-id9815_7d85fb-81 > .kt-row-column-wrap) > .wp-block-kadence-column{justify-content:center;}.kb-row-layout-id9815_7d85fb-81 > .kt-row-column-wrap{column-gap:var(--global-kb-gap-none, 0rem );padding-top:0em;padding-right:0em;padding-bottom:0em;padding-left:0em;grid-template-columns:minmax(0, calc(60% - ((var(--global-kb-gap-none, 0rem ) * 1 )/2)))minmax(0, calc(40% - ((var(--global-kb-gap-none, 0rem ) * 1 )/2)));}.kb-row-layout-id9815_7d85fb-81{background-color:rgba(238,238,238,0);}.kb-row-layout-id9815_7d85fb-81 .kt-row-layout-bottom-sep{height:80px;}.kb-row-layout-id9815_7d85fb-81 .kt-row-layout-bottom-sep svg{fill:var(--global-palette9, #ffffff)!important;}@media all and (max-width: 767px){.kb-row-layout-id9815_7d85fb-81 > .kt-row-column-wrap{grid-template-columns:minmax(0, 1fr);}.kb-row-layout-id9815_7d85fb-81 > .kt-row-column-wrap > .wp-block-kadence-column:nth-child(1){order:2;}.kb-row-layout-id9815_7d85fb-81 > .kt-row-column-wrap > .wp-block-kadence-column:nth-child(2){order:1;}.kb-row-layout-id9815_7d85fb-81 > .kt-row-column-wrap > .wp-block-kadence-column:nth-child(3){order:12;}.kb-row-layout-id9815_7d85fb-81 > .kt-row-column-wrap > .wp-block-kadence-column:nth-child(4){order:11;}.kb-row-layout-id9815_7d85fb-81 > .kt-row-column-wrap > .wp-block-kadence-column:nth-child(5){order:22;}.kb-row-layout-id9815_7d85fb-81 > .kt-row-column-wrap > .wp-block-kadence-column:nth-child(6){order:21;}.kb-row-layout-id9815_7d85fb-81 > .kt-row-column-wrap > .wp-block-kadence-column:nth-child(7){order:32;}.kb-row-layout-id9815_7d85fb-81 > .kt-row-column-wrap > .wp-block-kadence-column:nth-child(8){order:31;}}.kadence-column9815_4b3b3f-14 > .kt-inside-inner-col{display:flex;}.kadence-column9815_4b3b3f-14 > .kt-inside-inner-col{padding-right:5%;padding-left:10%;}.kadence-column9815_4b3b3f-14 > .kt-inside-inner-col{column-gap:var(--global-kb-gap-sm, 1rem);}.kadence-column9815_4b3b3f-14 > .kt-inside-inner-col{flex-direction:column;justify-content:center;}.kadence-column9815_4b3b3f-14 > .kt-inside-inner-col > .aligncenter{width:100%;}.kt-row-column-wrap > .kadence-column9815_4b3b3f-14{align-self:center;}.kt-inner-column-height-full:not(.kt-has-1-columns) > .wp-block-kadence-column.kadence-column9815_4b3b3f-14{align-self:auto;}.kt-inner-column-height-full:not(.kt-has-1-columns) > .wp-block-kadence-column.kadence-column9815_4b3b3f-14 > .kt-inside-inner-col{flex-direction:column;justify-content:center;}.kadence-column9815_4b3b3f-14 > .kt-inside-inner-col{background-color:rgba(255, 255, 255, 0);}@media all and (max-width: 1024px){.kadence-column9815_4b3b3f-14 > .kt-inside-inner-col{padding-top:17%;padding-bottom:18%;flex-direction:column;}}@media all and (max-width: 767px){.kadence-column9815_4b3b3f-14 > .kt-inside-inner-col{padding-top:12%;padding-right:5%;padding-bottom:12%;padding-left:5%;flex-direction:column;}}.wp-block-kadence-advancedheading.kt-adv-heading9815_b627fc-1c, .wp-block-kadence-advancedheading.kt-adv-heading9815_b627fc-1cdata-kb-blockkb-adv-heading9815_b627fc-1c{font-size:14px;font-weight:300;font-family:Poppins;}.wp-block-kadence-advancedheading.kt-adv-heading9815_c24633-1a, .wp-block-kadence-advancedheading.kt-adv-heading9815_c24633-1adata-kb-blockkb-adv-heading9815_c24633-1a{text-align:left;font-size:40px;font-weight:400;font-family:DM Serif Display;text-transform:lowercase;}@media all and (max-width: 1024px){.wp-block-kadence-advancedheading.kt-adv-heading9815_c24633-1a, .wp-block-kadence-advancedheading.kt-adv-heading9815_c24633-1adata-kb-blockkb-adv-heading9815_c24633-1a{margin-bottom:0px;}}.wp-block-kadence-advancedbtn.kb-btns9815_4d4056-5b{justify-content:flex-start;}@media all and (max-width: 767px){.wp-block-kadence-advancedbtn.kb-btns9815_4d4056-5b{flex-direction:column;align-items:flex-start;justify-content:center;}}ul.menu .wp-block-kadence-advancedbtn .kb-btn9815_9a96bd-cc.kb-button{width:initial;}.wp-block-kadence-advancedbtn .kb-btn9815_9a96bd-cc.kb-button{color:var(--global-palette9, #ffffff);background:var(--global-palette7, #EDF2F7);font-size:20px;font-family:Poppins;font-weight:300;text-transform:uppercase;border-top-left-radius:0px;border-top-right-radius:0px;border-bottom-right-radius:0px;border-bottom-left-radius:0px;border-top:1px solid var(--global-palette7, #EDF2F7);border-right:1px solid var(--global-palette7, #EDF2F7);border-bottom:1px solid var(--global-palette7, #EDF2F7);border-left:1px solid var(--global-palette7, #EDF2F7);}.wp-block-kadence-advancedbtn .kb-btn9815_9a96bd-cc.kb-button:hover{color:var(--global-palette7, #EDF2F7);background:var(--global-palette9, #ffffff);border-top:1px solid var(--global-palette7, #EDF2F7);border-right:1px solid var(--global-palette7, #EDF2F7);border-bottom:1px solid var(--global-palette7, #EDF2F7);border-left:1px solid var(--global-palette7, #EDF2F7);}@media all and (max-width: 1024px){.wp-block-kadence-advancedbtn .kb-btn9815_9a96bd-cc.kb-button{border-top:1px solid var(--global-palette7, #EDF2F7);border-right:1px solid var(--global-palette7, #EDF2F7);border-bottom:1px solid var(--global-palette7, #EDF2F7);border-left:1px solid var(--global-palette7, #EDF2F7);}}@media all and (max-width: 1024px){.wp-block-kadence-advancedbtn .kb-btn9815_9a96bd-cc.kb-button:hover{border-top:1px solid var(--global-palette7, #EDF2F7);border-right:1px solid var(--global-palette7, #EDF2F7);border-bottom:1px solid var(--global-palette7, #EDF2F7);border-left:1px solid var(--global-palette7, #EDF2F7);}}@media all and (max-width: 767px){.wp-block-kadence-advancedbtn .kb-btn9815_9a96bd-cc.kb-button{border-top:1px solid var(--global-palette7, #EDF2F7);border-right:1px solid var(--global-palette7, 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/div> /div>/div> /div> /div> /div> /div> div idmobile-header classsite-mobile-header-wrap> div classsite-header-inner-wrap> div classsite-header-upper-wrap> div classsite-header-upper-inner-wrap> div classsite-main-header-wrap site-header-focus-item site-header-row-layout-standard site-header-row-tablet-layout-default site-header-row-mobile-layout-default > div classsite-header-row-container-inner> div classsite-container> div classsite-main-header-inner-wrap site-header-row site-header-row-has-sides site-header-row-no-center> div classsite-header-main-section-left site-header-section site-header-section-left> div classsite-header-item site-header-focus-item data-sectiontitle_tagline> div classsite-branding mobile-site-branding branding-layout-standard branding-tablet-layout-inherit branding-mobile-layout-standard>a classbrand has-logo-image hrefhttps://chandlercrews.com/ relhome>div classsite-title-wrap>div classsite-title vs-md-false>Chandler C. Crews/div>/div>/a>/div>/div>!-- data-sectiontitle_tagline --> /div> div classsite-header-main-section-right site-header-section site-header-section-right> div classsite-header-item site-header-focus-item site-header-item-navgation-popup-toggle data-sectionkadence_customizer_mobile_trigger> div classmobile-toggle-open-container> button idmobile-toggle classmenu-toggle-open drawer-toggle menu-toggle-style-default aria-labelOpen menu data-toggle-target#mobile-drawer data-toggle-body-classshowing-popup-drawer-from-right aria-expandedfalse data-set-focus.menu-toggle-close > span classmenu-toggle-icon>span classkadence-svg-iconset>svg aria-hiddentrue classkadence-svg-icon kadence-menu-svg fillcurrentColor version1.1 xmlnshttp://www.w3.org/2000/svg width24 height24 viewBox0 0 24 24>title>Toggle Menu/title>path dM3 13h18c0.552 0 1-0.448 1-1s-0.448-1-1-1h-18c-0.552 0-1 0.448-1 1s0.448 1 1 1zM3 7h18c0.552 0 1-0.448 1-1s-0.448-1-1-1h-18c-0.552 0-1 0.448-1 1s0.448 1 1 1zM3 19h18c0.552 0 1-0.448 1-1s-0.448-1-1-1h-18c-0.552 0-1 0.448-1 1s0.448 1 1 1z>/path> /svg>/span>/span> /button> /div> /div>!-- data-sectionmobile_trigger --> /div> /div> /div> /div>/div> /div> /div> /div>/div>/header>!-- #masthead --> div idinner-wrap classwrap hfeed kt-clear> div idprimary classcontent-area> div classcontent-container site-container> main idmain classsite-main rolemain> div classwoocommerce kadence-woo-messages-none-woo-pages woocommerce-notices-wrapper>/div> div classcontent-wrap> article idpost-9815 classentry content-bg single-entry post-9815 page type-page status-publish hentry> div classentry-content-wrap> div classentry-content single-content> div classkb-row-layout-wrap kb-row-layout-id9815_7d85fb-81 alignfull kt-row-has-bg wp-block-kadence-rowlayout>div classkt-row-column-wrap kt-has-2-columns kt-row-layout-equal kt-tab-layout-inherit kt-mobile-layout-row kt-row-valign-middle>div classwp-block-kadence-column kadence-column9815_4b3b3f-14>div classkt-inside-inner-col>h6 classkt-adv-heading9815_b627fc-1c wp-block-kadence-advancedheading data-kb-blockkb-adv-heading9815_b627fc-1c>about/h6>h2 classkt-adv-heading9815_c24633-1a wp-block-kadence-advancedheading has-theme-palette-4-color has-text-color data-kb-blockkb-adv-heading9815_c24633-1a>CHANDLER c. CREWS/h2>p classhas-poppins-font-family stylefont-size:16px;font-style:normal;font-weight:300;text-transform:none>Strategic Communications & Patient Engagement Professional – I spend my days advocating, public speaking, and communicating with various patient networks, healthcare industry professionals, and biotech & pharmaceutical companies. More about my personal and professional achievements can be found on my a hrefhttps://chandlercrews.com/press/>Media & Engagements page/a>. 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hrefhttps://chandlercrews.com/2023-global-genes-rare-advocacy-summit/> div classpost-thumbnail-inner> img loadinglazy decodingasync width300 height169 srchttps://i0.wp.com/chandlercrews.com/wp-content/uploads/2023/09/CHANCREWS.COM-HELLOBOHO.png?fit300%2C169&ssl1 classattachment-medium size-medium wp-post-image altGlobal Genes Rare Advocacy Summit ’23 srcsethttps://i0.wp.com/chandlercrews.com/wp-content/uploads/2023/09/CHANCREWS.COM-HELLOBOHO.png?w1200&ssl1 1200w, https://i0.wp.com/chandlercrews.com/wp-content/uploads/2023/09/CHANCREWS.COM-HELLOBOHO.png?resize300%2C169&ssl1 300w, https://i0.wp.com/chandlercrews.com/wp-content/uploads/2023/09/CHANCREWS.COM-HELLOBOHO.png?resize800%2C450&ssl1 800w sizes(max-width: 300px) 100vw, 300px data-attachment-id10284 data-permalinkhttps://chandlercrews.com/2023-global-genes-rare-advocacy-summit/chancrews-com-helloboho/ data-orig-filehttps://i0.wp.com/chandlercrews.com/wp-content/uploads/2023/09/CHANCREWS.COM-HELLOBOHO.png?fit1200%2C675&ssl1 data-orig-size1200,675 data-comments-opened1 data-image-meta{"aperture":"0","credit":"","camera":"","caption":"","created_timestamp":"0","copyright":"","focal_length":"0","iso":"0","shutter_speed":"0","title":"","orientation":"0"} data-image-titleCHANCREWS.COM – HELLOBOHO data-image-description data-image-caption data-medium-filehttps://i0.wp.com/chandlercrews.com/wp-content/uploads/2023/09/CHANCREWS.COM-HELLOBOHO.png?fit300%2C169&ssl1 data-large-filehttps://i0.wp.com/chandlercrews.com/wp-content/uploads/2023/09/CHANCREWS.COM-HELLOBOHO.png?fit1200%2C675&ssl1 tabindex0 rolebutton /> /div> /a>!-- .post-thumbnail --> div classentry-content-wrap> header classentry-header> h4 classentry-title>a hrefhttps://chandlercrews.com/2023-global-genes-rare-advocacy-summit/ relbookmark>Global Genes Rare Advocacy Summit ’23/a>/h4>/header>!-- .entry-header --> div classentry-summary> p>📷 Featured image: Global Genes Week in Rare, hosted by Global Genes, has easily become one of my favorite weeks, and I look forward to it each year. This year,…/p> /div>!-- .entry-summary --> footer classentry-footer> /footer>!-- .entry-footer --> /div>/article>article classentry content-bg loop-entry post-10314 post type-post status-publish format-standard has-post-thumbnail hentry category-achondroplasia category-limb-lengthening tag-achondroplasia tag-baltimore tag-limb-lengthening tag-taylor-swift> a classpost-thumbnail kadence-thumbnail-ratio-1-1 hrefhttps://chandlercrews.com/im-13-now-and/> div classpost-thumbnail-inner> img loadinglazy decodingasync width300 height169 srchttps://i0.wp.com/chandlercrews.com/wp-content/uploads/2023/12/13.png?fit300%2C169&ssl1 classattachment-medium size-medium wp-post-image altI’m 13 now, and… srcsethttps://i0.wp.com/chandlercrews.com/wp-content/uploads/2023/12/13.png?w1200&ssl1 1200w, https://i0.wp.com/chandlercrews.com/wp-content/uploads/2023/12/13.png?resize300%2C169&ssl1 300w, https://i0.wp.com/chandlercrews.com/wp-content/uploads/2023/12/13.png?resize800%2C450&ssl1 800w sizes(max-width: 300px) 100vw, 300px data-attachment-id10315 data-permalinkhttps://chandlercrews.com/im-13-now-and/attachment/13/ data-orig-filehttps://i0.wp.com/chandlercrews.com/wp-content/uploads/2023/12/13.png?fit1200%2C675&ssl1 data-orig-size1200,675 data-comments-opened1 data-image-meta{"aperture":"0","credit":"","camera":"","caption":"","created_timestamp":"0","copyright":"","focal_length":"0","iso":"0","shutter_speed":"0","title":"","orientation":"0"} data-image-title13 data-image-description data-image-caption data-medium-filehttps://i0.wp.com/chandlercrews.com/wp-content/uploads/2023/12/13.png?fit300%2C169&ssl1 data-large-filehttps://i0.wp.com/chandlercrews.com/wp-content/uploads/2023/12/13.png?fit1200%2C675&ssl1 tabindex0 rolebutton /> /div> /a>!-- .post-thumbnail --> div classentry-content-wrap> header classentry-header> h4 classentry-title>a hrefhttps://chandlercrews.com/im-13-now-and/ relbookmark>I’m 13 now, and…/a>/h4>/header>!-- .entry-header --> div classentry-summary> p>I’m 13 now, and…well, my legs are 13 now 🎂 13 years ago today, “Never have I ever before” was what I was feeling, but I didn’t quite know how…/p> /div>!-- .entry-summary --> footer classentry-footer> /footer>!-- .entry-footer --> /div>/article>article classentry content-bg loop-entry post-8559 post type-post status-publish format-standard has-post-thumbnail hentry category-achondroplasia category-diagnosis category-pharmaceutical tag-achondroplasia tag-diagnosis tag-treatment tag-vosoritide tag-voxzogo> a classpost-thumbnail kadence-thumbnail-ratio-1-1 hrefhttps://chandlercrews.com/tolerate-it/> div classpost-thumbnail-inner> img loadinglazy decodingasync width300 height413 srchttps://i0.wp.com/chandlercrews.com/wp-content/uploads/2023/01/tolerate-1.png?fit300%2C413&ssl1 classattachment-medium size-medium wp-post-image altTolerate It srcsethttps://i0.wp.com/chandlercrews.com/wp-content/uploads/2023/01/tolerate-1.png?w800&ssl1 800w, https://i0.wp.com/chandlercrews.com/wp-content/uploads/2023/01/tolerate-1.png?resize300%2C413&ssl1 300w, https://i0.wp.com/chandlercrews.com/wp-content/uploads/2023/01/tolerate-1.png?resize600%2C825&ssl1 600w sizes(max-width: 300px) 100vw, 300px data-attachment-id8703 data-permalinkhttps://chandlercrews.com/tolerate-it/tolerate-2/ data-orig-filehttps://i0.wp.com/chandlercrews.com/wp-content/uploads/2023/01/tolerate-1.png?fit800%2C1100&ssl1 data-orig-size800,1100 data-comments-opened1 data-image-meta{"aperture":"0","credit":"","camera":"","caption":"","created_timestamp":"0","copyright":"","focal_length":"0","iso":"0","shutter_speed":"0","title":"","orientation":"0"} data-image-titletolerate data-image-description data-image-caption data-medium-filehttps://i0.wp.com/chandlercrews.com/wp-content/uploads/2023/01/tolerate-1.png?fit300%2C413&ssl1 data-large-filehttps://i0.wp.com/chandlercrews.com/wp-content/uploads/2023/01/tolerate-1.png?fit800%2C1100&ssl1 tabindex0 rolebutton /> /div> /a>!-- .post-thumbnail --> div classentry-content-wrap> header classentry-header> h4 classentry-title>a hrefhttps://chandlercrews.com/tolerate-it/ relbookmark>Tolerate It/a>/h4>/header>!-- .entry-header --> div classentry-summary> p>I wake and watch you breathing with your eyes closedI sit and watch youI notice everything you do or don’t do dessner, a. swift, t. (2020). tolerate it. on evermore…./p> /div>!-- .entry-summary --> footer classentry-footer> /footer>!-- .entry-footer --> /div>/article>/div>div classwp-block-kadence-advancedbtn kb-buttons-wrap kb-btns9815_14d9b5-89>a classkb-button kt-button button kb-btn9815_8e88f8-10 kt-btn-size-standard kt-btn-width-type-auto kb-btn-global-fill kt-btn-has-text-true kt-btn-has-svg-true wp-block-kadence-singlebtn hrefhttps://chandlercrews.com/blog-3/>span classkt-btn-inner-text>more posts/span>span classkb-svg-icon-wrap kb-svg-icon-fe_arrowRight kt-btn-icon-side-right>svg viewBox0 0 24 24 fillnone strokecurrentColor stroke-width2 stroke-linecapround stroke-linejoinround xmlnshttp://www.w3.org/2000/svg aria-hiddentrue>line x15 y112 x219 y212/>polyline points12 5 19 12 12 19/>/svg>/span>/a>/div>/div>/div>div classkb-row-layout-wrap kb-row-layout-id9815_607b97-fc alignfull wp-block-kadence-rowlayout>div classkt-row-column-wrap kt-has-1-columns kt-row-layout-equal kt-tab-layout-inherit kt-mobile-layout-row kt-row-valign-top>div classwp-block-kadence-column kadence-column9815_6714e0-84>div classkt-inside-inner-col>div classkb-row-layout-wrap kb-row-layout-id9815_f41127-4e alignfull kt-row-has-bg wp-block-kadence-rowlayout>div classkt-row-column-wrap kt-has-1-columns kt-row-layout-equal kt-tab-layout-inherit kt-mobile-layout-row kt-row-valign-top kb-theme-content-width>div classwp-block-kadence-column kadence-column9815_56b882-ca>div classkt-inside-inner-col>div classkb-row-layout-wrap kb-row-layout-id9815_57e149-bb alignnone wp-block-kadence-rowlayout>div classkt-row-column-wrap kt-has-2-columns kt-row-layout-left-golden kt-tab-layout-inherit kt-mobile-layout-row kt-row-valign-top>div classwp-block-kadence-column kadence-column9815_c9b106-b2>div classkt-inside-inner-col>h6 classkt-adv-heading9815_9638ae-ff wp-block-kadence-advancedheading data-kb-blockkb-adv-heading9815_9638ae-ff>a few of my favorite things/h6>h2 classkt-adv-heading9815_95d029-ea wp-block-kadence-advancedheading data-kb-blockkb-adv-heading9815_95d029-ea>coffee & connection/h2>p classhas-poppins-font-family stylefont-style:normal;font-weight:300>Drinking coffee and connecting with others are two of my favorite things ☺️ I would love to hear from you and discuss how we can work together. Grab your favorite coffee and complete the form so we can connect! /p>p classhas-theme-palette-3-color has-text-color has-link-color has-poppins-font-family wp-elements-af36b1910de6c608385e6455a9d404b3 stylefont-style:normal;font-weight:300>For personal emails, collaborations, or other inquiries, please email a hrefmailto:hello@chandlercrews.com>hello@chandlercrews.com/a>/p>/div>/div>div classwp-block-kadence-column kadence-column9815_2c5c62-f6>div classkt-inside-inner-col>div classwp-block-kadence-form kadence-form-9815_a4b1d1-11 kb-form-wrap>form classkb-form action methodpost>div classkadence-blocks-form-field kb-field-desk-width-100 kb-input-size-standard>label forkb_field_9815_a4b1d1-11_0>Name/label>input namekb_field_0 idkb_field_9815_a4b1d1-11_0 data-labelName typetext placeholder value data-typetext classkb-field kb-text-style-field kb-text-field kb-field-0/>/div>div classkadence-blocks-form-field kb-form-field-1 kb-field-desk-width-100 kb-input-size-standard>label forkb_field_9815_a4b1d1-11_1>Emailspan classrequired>*/span>/label>input namekb_field_1 idkb_field_9815_a4b1d1-11_1 data-labelEmail typeemail placeholder value data-typeemail classkb-field kb-text-style-field kb-email-field kb-field-1 data-requiredyes/>/div>div classkadence-blocks-form-field kb-form-field-2 kb-field-desk-width-100 kb-input-size-standard>label forkb_field_9815_a4b1d1-11_2>Messagespan classrequired>*/span>/label>textarea namekb_field_2 idkb_field_9815_a4b1d1-11_2 data-labelMessage typetextarea placeholder data-typetextarea classkb-field kb-text-style-field kb-textarea-field kb-field-2 rows4 data-requiredyes>/textarea>/div>input typehidden name_kb_form_id value9815_a4b1d1-11/>input typehidden name_kb_form_post_id value9815/>input typehidden nameaction valuekb_process_ajax_submit/>input classkadence-blocks-field verify typetext name_kb_verify_email autocompletenew-password aria-hiddentrue placeholderEmail tabindex-1 data-1p-ignoretrue data-lpignoretrue />div classkadence-blocks-form-field kb-submit-field kb-field-desk-width-100>button classkb-forms-submit button kb-button-size-standard kb-button-width-auto>Submit/button>/div>/form>/div>noscript>div classkadence-blocks-form-message kadence-blocks-form-warning>Please enable JavaScript in your browser to submit the form/div>style>.kadence-form-9815_a4b1d1-11 .kadence-blocks-form-field.kb-submit-field { display: none; 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Ryan & I met through @limblengthmd where we both underwent limb lengthening.my beautiful friends, @sugijon76 & @littlelegsbigheart, and friends of tcp, @fundacionalpe @littlelegs.bigheart.foundation, no one told us life was going to be this way 👏🏻👏🏻👏🏻👏🏻 advocacy is no JOKE – I love being on this journey with you!Victoria & Alexandra, I don’t even have the words. you two are beyond incredible. you remind of what it was like watching my own mom advocate for me the way you both advocate for Julia & Huddy 🩷🩵 hearing your stories not only made other parents feel seen & heard, but it made the physicians & researchers see and hear what end-points and opportunities parents want available + access to for their child.last but certainly not least, the physicians & researchers – being able to work with you all and call you up gives me the same satisfaction as if I had @taylorswift’s number and could just call her up ✨ each one of you hangs the stars & moon for so many of us. Your dedication goes beyond just treating the diagnosis that’s on paper. You don’t only hear us, but you listen. You made me feel like a mastermind for being able to bring all of you in the same room together at the same time 🤩– Dr. Janet Legare, @uwmadison– Dr. Jeffrey Campbell, @nemours– @orthodoctorphil, @limblengthmd– Dr. Shawn Standard, Nemours Orlando (Nov. 2024)– Dr. Klane White, @childrenscolo– Dr. Andrew Dauber, @childrensnationalwhen I started the @chandlerproject nearly 7 years ago, I don’t think I could’ve imagined that this is where it would be today – the groundwork for next year is already being laid out 🗺️ see y’all there 😉#achondroplasia #achondroplasiaawareness #dwarfism #dwarfismawareness #skeletaldysplasia #limblengthening #patientadvocacy #patientadvocate> /a> /div>/div>div classsbi_item sbi_type_image sbi_new sbi_transition idsbi_18029394767117009 data-date1718575055> div classsbi_photo_wrap> a classsbi_photo hrefhttps://www.instagram.com/p/C8SuBXIPS1p/ target_blank relnoopener nofollow 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data-img-src-set{"d":"https:\/\/scontent-lax3-2.cdninstagram.com\/v\/t51.29350-15\/448388481_1562270111374072_3012011566574420472_n.jpg?_nc_cat101&ccb1-7&_nc_sid18de74&_nc_ohcoAbKxzhn1X0Q7kNvgEiicre&_nc_htscontent-lax3-2.cdninstagram.com&edmANo9K5cEAAAA&oh00_AYCWvxXSR58sGhJ3-3GRlEtMrqHxxYtVjQ8d3eDWxkXbDw&oe669E6BB7","150":"https:\/\/scontent-lax3-2.cdninstagram.com\/v\/t51.29350-15\/448388481_1562270111374072_3012011566574420472_n.jpg?_nc_cat101&ccb1-7&_nc_sid18de74&_nc_ohcoAbKxzhn1X0Q7kNvgEiicre&_nc_htscontent-lax3-2.cdninstagram.com&edmANo9K5cEAAAA&oh00_AYCWvxXSR58sGhJ3-3GRlEtMrqHxxYtVjQ8d3eDWxkXbDw&oe669E6BB7","320":"https:\/\/scontent-lax3-2.cdninstagram.com\/v\/t51.29350-15\/448388481_1562270111374072_3012011566574420472_n.jpg?_nc_cat101&ccb1-7&_nc_sid18de74&_nc_ohcoAbKxzhn1X0Q7kNvgEiicre&_nc_htscontent-lax3-2.cdninstagram.com&edmANo9K5cEAAAA&oh00_AYCWvxXSR58sGhJ3-3GRlEtMrqHxxYtVjQ8d3eDWxkXbDw&oe669E6BB7","640":"https:\/\/scontent-lax3-2.cdninstagram.com\/v\/t51.29350-15\/448388481_1562270111374072_3012011566574420472_n.jpg?_nc_cat101&ccb1-7&_nc_sid18de74&_nc_ohcoAbKxzhn1X0Q7kNvgEiicre&_nc_htscontent-lax3-2.cdninstagram.com&edmANo9K5cEAAAA&oh00_AYCWvxXSR58sGhJ3-3GRlEtMrqHxxYtVjQ8d3eDWxkXbDw&oe669E6BB7"}> span classsbi-screenreader>• forever holding my hands and always singing to/span> img srchttps://chandlercrews.com/wp-content/plugins/instagram-feed/img/placeholder.png alt• forever holding my hands and always singing to me, from The Christmas Song in June or The Beatles on a long drive, and more often than not, always reminding me to “talk like a lady” whenever I start to swear too much like you 🤪 one thing’s for sure…I have the raddest dad, DAMMIT! 🧡 ***peace, love, and happy father’s day, daddio!*** ✌🏻 #fathersday #dadsanddaughters> /a> /div>/div>div classsbi_item sbi_type_image sbi_new sbi_transition idsbi_18133080691338337 data-date1717099548> div classsbi_photo_wrap> a classsbi_photo hrefhttps://www.instagram.com/p/C7mvtvRvZHy/ target_blank relnoopener nofollow 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data-img-src-set{"d":"https:\/\/scontent-lax3-1.cdninstagram.com\/v\/t51.29350-15\/447118222_421352350772233_9197556094034173290_n.jpg?_nc_cat104&ccb1-7&_nc_sid18de74&_nc_ohc5naznBTPjvgQ7kNvgGQOCTT&_nc_htscontent-lax3-1.cdninstagram.com&edmANo9K5cEAAAA&oh00_AYBcMZwUfrrxG7StRMXhwWYu-b2pQVscQHxtEbpxP5XaTQ&oe669E7CE1","150":"https:\/\/scontent-lax3-1.cdninstagram.com\/v\/t51.29350-15\/447118222_421352350772233_9197556094034173290_n.jpg?_nc_cat104&ccb1-7&_nc_sid18de74&_nc_ohc5naznBTPjvgQ7kNvgGQOCTT&_nc_htscontent-lax3-1.cdninstagram.com&edmANo9K5cEAAAA&oh00_AYBcMZwUfrrxG7StRMXhwWYu-b2pQVscQHxtEbpxP5XaTQ&oe669E7CE1","320":"https:\/\/scontent-lax3-1.cdninstagram.com\/v\/t51.29350-15\/447118222_421352350772233_9197556094034173290_n.jpg?_nc_cat104&ccb1-7&_nc_sid18de74&_nc_ohc5naznBTPjvgQ7kNvgGQOCTT&_nc_htscontent-lax3-1.cdninstagram.com&edmANo9K5cEAAAA&oh00_AYBcMZwUfrrxG7StRMXhwWYu-b2pQVscQHxtEbpxP5XaTQ&oe669E7CE1","640":"https:\/\/scontent-lax3-1.cdninstagram.com\/v\/t51.29350-15\/447118222_421352350772233_9197556094034173290_n.jpg?_nc_cat104&ccb1-7&_nc_sid18de74&_nc_ohc5naznBTPjvgQ7kNvgGQOCTT&_nc_htscontent-lax3-1.cdninstagram.com&edmANo9K5cEAAAA&oh00_AYBcMZwUfrrxG7StRMXhwWYu-b2pQVscQHxtEbpxP5XaTQ&oe669E7CE1"}> span classsbi-screenreader>• before there was the four seasons orlando baby/span> img srchttps://chandlercrews.com/wp-content/plugins/instagram-feed/img/placeholder.png alt• before there was the four seasons orlando baby, there was her…and her pointy little shark tooth ✨#tbt #throwbackthursday #achondroplasia #dwarfism #skeletaldysplasia #summer #nineties #90s #fourseasons #orlando> /a> /div>/div>div classsbi_item sbi_type_video sbi_new sbi_transition idsbi_17920013435816961 data-date1716489783> div classsbi_photo_wrap> a classsbi_photo hrefhttps://www.instagram.com/reel/C7Ujt-ZRNDj/ target_blank relnoopener nofollow data-full-reshttps://scontent-lax3-1.cdninstagram.com/v/t51.29350-15/446108237_1005354717642422_5494217259647996760_n.jpg?_nc_cat110&ccb1-7&_nc_sid18de74&_nc_ohcDZbXPtcR2hUQ7kNvgEBjMeG&_nc_htscontent-lax3-1.cdninstagram.com&edmANo9K5cEAAAA&oh00_AYColfQ-xTxJ7kzIJdVRHIc09f6ErOEMDKvCslBLlyCgoQ&oe669E6617 data-img-src-set{"d":"https:\/\/scontent-lax3-1.cdninstagram.com\/v\/t51.29350-15\/446108237_1005354717642422_5494217259647996760_n.jpg?_nc_cat110&ccb1-7&_nc_sid18de74&_nc_ohcDZbXPtcR2hUQ7kNvgEBjMeG&_nc_htscontent-lax3-1.cdninstagram.com&edmANo9K5cEAAAA&oh00_AYColfQ-xTxJ7kzIJdVRHIc09f6ErOEMDKvCslBLlyCgoQ&oe669E6617","150":"https:\/\/scontent-lax3-1.cdninstagram.com\/v\/t51.29350-15\/446108237_1005354717642422_5494217259647996760_n.jpg?_nc_cat110&ccb1-7&_nc_sid18de74&_nc_ohcDZbXPtcR2hUQ7kNvgEBjMeG&_nc_htscontent-lax3-1.cdninstagram.com&edmANo9K5cEAAAA&oh00_AYColfQ-xTxJ7kzIJdVRHIc09f6ErOEMDKvCslBLlyCgoQ&oe669E6617","320":"https:\/\/scontent-lax3-1.cdninstagram.com\/v\/t51.29350-15\/446108237_1005354717642422_5494217259647996760_n.jpg?_nc_cat110&ccb1-7&_nc_sid18de74&_nc_ohcDZbXPtcR2hUQ7kNvgEBjMeG&_nc_htscontent-lax3-1.cdninstagram.com&edmANo9K5cEAAAA&oh00_AYColfQ-xTxJ7kzIJdVRHIc09f6ErOEMDKvCslBLlyCgoQ&oe669E6617","640":"https:\/\/scontent-lax3-1.cdninstagram.com\/v\/t51.29350-15\/446108237_1005354717642422_5494217259647996760_n.jpg?_nc_cat110&ccb1-7&_nc_sid18de74&_nc_ohcDZbXPtcR2hUQ7kNvgEBjMeG&_nc_htscontent-lax3-1.cdninstagram.com&edmANo9K5cEAAAA&oh00_AYColfQ-xTxJ7kzIJdVRHIc09f6ErOEMDKvCslBLlyCgoQ&oe669E6617"}> span classsbi-screenreader>/span> svg stylecolor: rgba(255,255,255,1) classsvg-inline--fa fa-play fa-w-14 sbi_playbtn aria-labelPlay aria-hiddentrue data-fa-processed data-prefixfa data-iconplay rolepresentation xmlnshttp://www.w3.org/2000/svg viewBox0 0 448 512>path fillcurrentColor dM424.4 214.7L72.4 6.6C43.8-10.3 0 6.1 0 47.9V464c0 37.5 40.7 60.1 72.4 41.3l352-208c31.4-18.5 31.5-64.1 0-82.6z>/path>/svg> img srchttps://chandlercrews.com/wp-content/plugins/instagram-feed/img/placeholder.png altAs stated, @aubreysmalls, you “can’t imagine” going through limb lengthening because “it’s one of the most painful procedures,” but unless you have actually gone through it, you can only assume it would be more painful than your spinal surgeries or other procedures you’ve had related to your specific form of dwarfism, diastrophic dysplasia.Because you have #diastrophicdysplasia, then yes, #limblengthening would probably be the most painful of procedures for you, given epiphyseal involvement and risk for degenerative joint disease involved with DD, unlike those with #achondroplasia or #hypochondroplasia.As I stated, LL is not an option for every form of #dwarfism or #skeletaldysplasia, depending on their diagnosis. The majority of those with dwarfism who go through LL have either achon. or hypo. It’s extremely important to note that the procedure has drastically evolved and changed over time and is much less invasive than it was 20 years ago. In fact, there are only TWO institutes in the US alone that have performed this procedure (for dwarfism) more than any other institutes or physicians – @limblengthmd @paleyinstituteThe page from which the medical illustration you refer to is taken (@limblengthmd) shares in great detail the process of lengthening for dwarfism. To lengthen, you don’t “crank” devices; you adjust specialized struts and/or use an external remote control device if the device is internal.I truly appreciate the content that you create and think it’s all very informative. However, when you talk about lengthening in this light and allow others to comment negatively about the procedure as a whole, it makes it harder for those who go through this treatment when IT IS medically necessary to advocate for themselves or their child — not just those with dwarfism, but also those with limb length discrepancies, etc…the more you know 🌈#advocate #patientadvocate #patientadvocacy #dwarfismawareness #limbdifference #limbdifferenceawareness> /a> /div>/div>div classsbi_item sbi_type_carousel sbi_new sbi_transition idsbi_18058154617603617 data-date1715536015> div classsbi_photo_wrap> a classsbi_photo hrefhttps://www.instagram.com/p/C64Jg0ir0j5/ target_blank relnoopener nofollow data-full-reshttps://scontent-lax3-2.cdninstagram.com/v/t51.29350-15/442658652_459555983187918_4076068462496498987_n.jpg?_nc_cat106&ccb1-7&_nc_sid18de74&_nc_ohcw0scaBreh5MQ7kNvgENU1pw&_nc_htscontent-lax3-2.cdninstagram.com&edmANo9K5cEAAAA&oh00_AYDKJB0eA-C9xDRGbOlyZ8fGKiQPFjosw2DIUBBKiSqzkg&oe669E5C39 data-img-src-set{"d":"https:\/\/scontent-lax3-2.cdninstagram.com\/v\/t51.29350-15\/442658652_459555983187918_4076068462496498987_n.jpg?_nc_cat106&ccb1-7&_nc_sid18de74&_nc_ohcw0scaBreh5MQ7kNvgENU1pw&_nc_htscontent-lax3-2.cdninstagram.com&edmANo9K5cEAAAA&oh00_AYDKJB0eA-C9xDRGbOlyZ8fGKiQPFjosw2DIUBBKiSqzkg&oe669E5C39","150":"https:\/\/scontent-lax3-2.cdninstagram.com\/v\/t51.29350-15\/442658652_459555983187918_4076068462496498987_n.jpg?_nc_cat106&ccb1-7&_nc_sid18de74&_nc_ohcw0scaBreh5MQ7kNvgENU1pw&_nc_htscontent-lax3-2.cdninstagram.com&edmANo9K5cEAAAA&oh00_AYDKJB0eA-C9xDRGbOlyZ8fGKiQPFjosw2DIUBBKiSqzkg&oe669E5C39","320":"https:\/\/scontent-lax3-2.cdninstagram.com\/v\/t51.29350-15\/442658652_459555983187918_4076068462496498987_n.jpg?_nc_cat106&ccb1-7&_nc_sid18de74&_nc_ohcw0scaBreh5MQ7kNvgENU1pw&_nc_htscontent-lax3-2.cdninstagram.com&edmANo9K5cEAAAA&oh00_AYDKJB0eA-C9xDRGbOlyZ8fGKiQPFjosw2DIUBBKiSqzkg&oe669E5C39","640":"https:\/\/scontent-lax3-2.cdninstagram.com\/v\/t51.29350-15\/442658652_459555983187918_4076068462496498987_n.jpg?_nc_cat106&ccb1-7&_nc_sid18de74&_nc_ohcw0scaBreh5MQ7kNvgENU1pw&_nc_htscontent-lax3-2.cdninstagram.com&edmANo9K5cEAAAA&oh00_AYDKJB0eA-C9xDRGbOlyZ8fGKiQPFjosw2DIUBBKiSqzkg&oe669E5C39"}> span classsbi-screenreader>• i’m who i am because of them 💕 #mothersda/span> svg classsvg-inline--fa fa-clone fa-w-16 sbi_lightbox_carousel_icon aria-hiddentrue aria-labelClone data-fa-proƒcessed data-prefixfar data-iconclone roleimg xmlnshttp://www.w3.org/2000/svg viewBox0 0 512 512> path fillcurrentColor dM464 0H144c-26.51 0-48 21.49-48 48v48H48c-26.51 0-48 21.49-48 48v320c0 26.51 21.49 48 48 48h320c26.51 0 48-21.49 48-48v-48h48c26.51 0 48-21.49 48-48V48c0-26.51-21.49-48-48-48zM362 464H54a6 6 0 0 1-6-6V150a6 6 0 0 1 6-6h42v224c0 26.51 21.49 48 48 48h224v42a6 6 0 0 1-6 6zm96-96H150a6 6 0 0 1-6-6V54a6 6 0 0 1 6-6h308a6 6 0 0 1 6 6v308a6 6 0 0 1-6 6z>/path> /svg> img srchttps://chandlercrews.com/wp-content/plugins/instagram-feed/img/placeholder.png alt• i’m who i am because of them 💕 #mothersday> /a> /div>/div>div classsbi_item sbi_type_carousel sbi_new sbi_transition idsbi_18301896364153871 data-date1715101176> div classsbi_photo_wrap> a classsbi_photo hrefhttps://www.instagram.com/p/C6rMHyBRmuY/ target_blank relnoopener nofollow data-full-reshttps://scontent-lax3-2.cdninstagram.com/v/t51.29350-15/442451877_3616691821923614_159291952841756779_n.jpg?_nc_cat107&ccb1-7&_nc_sid18de74&_nc_ohcG9PyoMGIvWEQ7kNvgG2_8q9&_nc_htscontent-lax3-2.cdninstagram.com&edmANo9K5cEAAAA&oh00_AYB-h46zxAqkqSp2YVkn4v5PnU1Vv4uoPqDxvDoDquZZCA&oe669E7CC6 data-img-src-set{"d":"https:\/\/scontent-lax3-2.cdninstagram.com\/v\/t51.29350-15\/442451877_3616691821923614_159291952841756779_n.jpg?_nc_cat107&ccb1-7&_nc_sid18de74&_nc_ohcG9PyoMGIvWEQ7kNvgG2_8q9&_nc_htscontent-lax3-2.cdninstagram.com&edmANo9K5cEAAAA&oh00_AYB-h46zxAqkqSp2YVkn4v5PnU1Vv4uoPqDxvDoDquZZCA&oe669E7CC6","150":"https:\/\/scontent-lax3-2.cdninstagram.com\/v\/t51.29350-15\/442451877_3616691821923614_159291952841756779_n.jpg?_nc_cat107&ccb1-7&_nc_sid18de74&_nc_ohcG9PyoMGIvWEQ7kNvgG2_8q9&_nc_htscontent-lax3-2.cdninstagram.com&edmANo9K5cEAAAA&oh00_AYB-h46zxAqkqSp2YVkn4v5PnU1Vv4uoPqDxvDoDquZZCA&oe669E7CC6","320":"https:\/\/scontent-lax3-2.cdninstagram.com\/v\/t51.29350-15\/442451877_3616691821923614_159291952841756779_n.jpg?_nc_cat107&ccb1-7&_nc_sid18de74&_nc_ohcG9PyoMGIvWEQ7kNvgG2_8q9&_nc_htscontent-lax3-2.cdninstagram.com&edmANo9K5cEAAAA&oh00_AYB-h46zxAqkqSp2YVkn4v5PnU1Vv4uoPqDxvDoDquZZCA&oe669E7CC6","640":"https:\/\/scontent-lax3-2.cdninstagram.com\/v\/t51.29350-15\/442451877_3616691821923614_159291952841756779_n.jpg?_nc_cat107&ccb1-7&_nc_sid18de74&_nc_ohcG9PyoMGIvWEQ7kNvgG2_8q9&_nc_htscontent-lax3-2.cdninstagram.com&edmANo9K5cEAAAA&oh00_AYB-h46zxAqkqSp2YVkn4v5PnU1Vv4uoPqDxvDoDquZZCA&oe669E7CC6"}> span classsbi-screenreader>• oh, how I love you, Chicago! I didn’t have e/span> svg classsvg-inline--fa fa-clone fa-w-16 sbi_lightbox_carousel_icon aria-hiddentrue aria-labelClone data-fa-proƒcessed data-prefixfar data-iconclone roleimg xmlnshttp://www.w3.org/2000/svg viewBox0 0 512 512> path fillcurrentColor dM464 0H144c-26.51 0-48 21.49-48 48v48H48c-26.51 0-48 21.49-48 48v320c0 26.51 21.49 48 48 48h320c26.51 0 48-21.49 48-48v-48h48c26.51 0 48-21.49 48-48V48c0-26.51-21.49-48-48-48zM362 464H54a6 6 0 0 1-6-6V150a6 6 0 0 1 6-6h42v224c0 26.51 21.49 48 48 48h224v42a6 6 0 0 1-6 6zm96-96H150a6 6 0 0 1-6-6V54a6 6 0 0 1 6-6h308a6 6 0 0 1 6 6v308a6 6 0 0 1-6 6z>/path> /svg> img srchttps://chandlercrews.com/wp-content/plugins/instagram-feed/img/placeholder.png alt• oh, how I love you, Chicago! I didn’t have enough time to let the wind take me where it wanted to go this weekend, but that didn’t stop me from getting lost @sheratongrandchicago 😜this past weekend, I presented to over 100 endocrinologists, HCPs, and industry professionals at the annual Pediatric Endocrine Society meeting, sharing, from a patient perspective, what endocrinologists should know when seeing patients with #achondroplasia for the first time in this new era of care. I also discussed the diversity of opinion when it comes to medical interventions – pharmaceutical and #limblengthening for achondroplasia and other skeletal dysplasias. 🫶🏻endocrinologists are new to the achondroplasia care team – especially now that there is an FDA-approved treatment, @biomarinpharmaceutical’s VOXZOGO (#vosoritide). In this new generation, with VOXZOGO and other treatments in development, ped. endos will be seeing and treating patients with ACH, as geneticists and orthopedists typically don’t prescribe medication such as this one, but times are changing! 🦋just because endocrinologists may soon become the “main” provider, they should still advise patients and their families to get baseline MRIs and always closely monitor the spine (as expressed by fellow presenter Dr. Julie Hoover-Fong, @hopkinsmedicine), orthopedic management, and so on...❤️🩹#VOXZOGO and other treatments on the horizon are promising to prevent and alleviate so many of the medical complications, some even life-threatening, associated with achondroplasia. 🧬during the meeting, I had time to meet with members from #BioMarin, #QEDtherapeutics, and #AscendisPharma – all who have developing research within the skeletal dysplasia space and who are supporters of the @chandlerproject’s 6th annual @achondroplasiaresearch & @skeletaldysplasia Research Conference next month in Baltimore — 𝗟𝗜𝗡𝗞 𝗜𝗡 𝗕𝗜𝗢 to register! 🤩#achondroplasiaawareness #achondroplasiaresearch #FGFR3 #dwarfism #dwarfismawareness #skeletaldysplasia #foramenmagnum #genetics #spinalstenosis #pediatrics #pediatrician #endocrine #patientadvocacy #patientadvocacte #infigratinib #transconcnp #tyra300> /a> /div>/div> /div> div idsbi_load > /div> span classsbi_resized_image_data data-feed-id*9 data-resized{"18301896364153871":{"id":"442451877_3616691821923614_159291952841756779_n","ratio":"0.80","sizes":{"full":640,"low":320,"thumb":150}},"18058154617603617":{"id":"442658652_459555983187918_4076068462496498987_n","ratio":"1.33","sizes":{"full":640,"low":320,"thumb":150}},"17920013435816961":{"id":"446108237_1005354717642422_5494217259647996760_n","ratio":"0.57","sizes":{"full":640,"low":320,"thumb":150}},"18133080691338337":{"id":"447118222_421352350772233_9197556094034173290_n","ratio":"0.80","sizes":{"full":640,"low":320,"thumb":150}},"18029394767117009":{"id":"448388481_1562270111374072_3012011566574420472_n","ratio":"1.53","sizes":{"full":640,"low":320,"thumb":150}},"17892170076045368":{"id":"450416306_18439021846014644_8268631956144893986_n","ratio":"0.80","sizes":{"full":640,"low":320,"thumb":150}}}> /span> /div>/section> /div>/div>!-- .footer-widget4 --> /div> /div> /div> /div>/div>div classsite-bottom-footer-wrap site-footer-row-container site-footer-focus-item site-footer-row-layout-fullwidth site-footer-row-tablet-layout-default site-footer-row-mobile-layout-default data-sectionkadence_customizer_footer_bottom> div classsite-footer-row-container-inner> div classsite-container> div classsite-bottom-footer-inner-wrap site-footer-row site-footer-row-columns-1 site-footer-row-column-layout-row site-footer-row-tablet-column-layout-default site-footer-row-mobile-column-layout-row ft-ro-dir-row ft-ro-collapse-normal ft-ro-t-dir-default ft-ro-m-dir-default ft-ro-lstyle-plain> div classsite-footer-bottom-section-1 site-footer-section footer-section-inner-items-1> div classfooter-widget-area site-info site-footer-focus-item content-align-center content-tablet-align-default content-mobile-align-default content-valign-middle content-tablet-valign-default content-mobile-valign-default data-sectionkadence_customizer_footer_html> div classfooter-widget-area-inner site-info-inner> div classfooter-html inner-link-style-plain>div classfooter-html-inner>p>Copyright © 2024 · Chandler C. 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