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34.2 51.3 51.2 5.1 4.9 9.7 9.9 10.9 17.2zM85.1 146.9c33 .5 61.5-27.3 61.9-60.4.4-33.7-26.7-61.5-60.6-62.2-33.3-.7-61.5 26.8-62.1 60.6-.6 33.3 27 61.5 60.8 62z/>/svg>span classsearch-close>/span>span classsearch-close>/span>/a>/li>	/ul>	header aria-labelPage Title classpage-header >						div stylebackground-image: url(https://buildingstrength.org/wp-content/uploads/sites/542/2023/03/Website-Header-1920-×-608-px-2-1920x608.png)>			img width1920 height608 srchttps://buildingstrength.org/wp-content/uploads/sites/542/2023/03/Website-Header-1920-×-608-px-2-1920x608.png classattachment-homepage-header size-homepage-header alt decodingasync fetchpriorityhigh srcsethttps://buildingstrength.org/wp-content/uploads/sites/542/2023/03/Website-Header-1920-×-608-px-2.png 1920w, https://buildingstrength.org/wp-content/uploads/sites/542/2023/03/Website-Header-1920-×-608-px-2-300x95.png 300w, https://buildingstrength.org/wp-content/uploads/sites/542/2023/03/Website-Header-1920-×-608-px-2-1024x324.png 1024w, https://buildingstrength.org/wp-content/uploads/sites/542/2023/03/Website-Header-1920-×-608-px-2-768x243.png 768w, https://buildingstrength.org/wp-content/uploads/sites/542/2023/03/Website-Header-1920-×-608-px-2-1536x486.png 1536w, https://buildingstrength.org/wp-content/uploads/sites/542/2023/03/Website-Header-1920-×-608-px-2-950x301.png 950w, https://buildingstrength.org/wp-content/uploads/sites/542/2023/03/Website-Header-1920-×-608-px-2-720x228.png 720w, https://buildingstrength.org/wp-content/uploads/sites/542/2023/03/Website-Header-1920-×-608-px-2-100x32.png 100w sizes(max-width: 1920px) 100vw, 1920px />		/div>		/header>!-- .page-header -->	div idcontent classsite-content>	div idprimary classcontent-area>		main idcontent-main classsite-main>								section classhomepage-tagline>	div>		h1>Advancing Nemaline Myopathy research. Supporting our community. We are strong where it matters./h1>	/div>/section>section classhomepage-hero-callouts >	div classclear>		div classmain-cta use-diagonal-lines-background>		a hrefhttps://buildingstrength.org/community/resources-support/ classdynamic-jazz-animation diagonal-lines-background>		h2>Resources & Support/h2>	/a>		/div>div classmain-cta use-diagonal-lines-background>		a hrefhttps://buildingstrength.org/research/ classdynamic-jazz-animation diagonal-lines-background>		h2>Research/h2>	/a>		/div>	/div>/section>section classhomepage-statistics >	div classclear>		h2>Our Impact/h2>				div classstats>			div classstat>		span classnumber data-end-number100 data-num-decimal-places0>0/span>	span classsuffix>%/span>	span classdescription>of your donation is invested in Nemaline Myopathy research/span>/div>div classstat>		span classnumber data-end-number42 data-num-decimal-places0>0/span>		span classdescription>research studies funded to date/span>/div>div classstat>		span classnumber data-end-number325 data-num-decimal-places0>0/span>	span classsuffix>+/span>	span classdescription>people with Nemaline Myopathy registered in CMDIR/span>/div>		/div>					a hrefhttps://buildingstrength.org/who-we-are/impact/  classstats-learn-more button secondary>SEE OUR IMPACT/a>			/div>/section>section classupcoming-events-container pioneer>	div>					h2>Upcoming Events/h2>				ul classupcoming-events-list>							li classclear>					    div classdate-block>                        a hrefhttps://buildingstrength.org/events/afbs-teen-young-adult-virtual-gathering/>                span classmonth>                    Feb                /span>                span classday-number>                    7                /span>            /a>                /div>    div classevent-details-block>                    h3 classevent-heading>a hrefhttps://buildingstrength.org/events/afbs-teen-young-adult-virtual-gathering/ classevent-title>AFBS Teen & Young Adult Virtual Gathering/a>/h3>        p>Join us for a relaxing, virtual gathering designed exclusively for teens and young adults (Ages 13 +) affected by Nemaline Myopathy (NM). Hosted by AFBS…/p>    span classevent-date>        Saturday, February 7, 2026    /span>                    span classevent-time>            9:00 am – 10:30 am                /span>                    span classevent-location>Online/span>                /div>				/li>							li classclear>					    div classdate-block>                        a hrefhttps://buildingstrength.org/events/afbs-virtual-kids-gathering-ages-12-under-2/>                span classmonth>                    Feb                /span>                span classday-number>                    8                /span>            /a>                /div>    div classevent-details-block>                    h3 classevent-heading>a hrefhttps://buildingstrength.org/events/afbs-virtual-kids-gathering-ages-12-under-2/ classevent-title>AFBS Virtual Kids Gathering (Ages 12 & Under)/a>/h3>        p>Join A Foundation Building Strength (AFBS) for a special virtual gathering designed just for kids ages 12 and under who are affected by Nemaline Myopathy (NM). Hosted by AFBS…/p>    span classevent-date>        Sunday, February 8, 2026    /span>                    span classevent-time>            11:00 am                /span>                    span classevent-location>Online/span>                /div>				/li>							li classclear>					    div classdate-block>                        a hrefhttps://buildingstrength.org/events/afbs-virtual-kids-gathering-ages-12-under/>                span classmonth>                    Mar                /span>                span classday-number>                    7                /span>            /a>                /div>    div classevent-details-block>                    h3 classevent-heading>a hrefhttps://buildingstrength.org/events/afbs-virtual-kids-gathering-ages-12-under/ classevent-title>AFBS Virtual Kids Gathering (Ages 12 & Under)/a>/h3>        p>Join A Foundation Building Strength (AFBS) for a special virtual gathering designed just for kids ages 12 and under who are affected by Nemaline Myopathy…/p>    span classevent-date>        Saturday, March 7, 2026    /span>                    span classevent-time>            9:00 am – 10:30 am                /span>                    span classevent-location>Online/span>                /div>				/li>					/ul>							a hrefhttps://buildingstrength.org/get-involved/events/ classview-all-events-link >View All Upcoming Events ›/a>			/div>/section>section classcallouts callout-num-1 text-callouts   has-buttons-on-the-right >		div>		div classcallout>							div classinner-container>				h2>Get Involved/h2>				p>We’d love to have you as part of our Nemaline Myopathy community! Check out the various way to get involved with AFBS, stay up-to-date, donate, and help us inspire others to join the cause./p>			/div>									div classcallout-button>						a hrefhttps://buildingstrength.org/get-involved/ classbutton>Learn More/a>					/div>											/div>	/div>/section>!-- .callouts -->section classhomepage-tiles >	div>		h2>FOR OUR COMMUNITY/h2>		p>We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community./p>				div classtiles-container>				div classtile>		a hrefhttps://buildingstrength.org/community/about-nemaline-myopathy/ classdynamic-jazz-animation>			span classtile-title>span>About Nemaline Myopathy/span>/span>			img decodingasync width767 height483 srchttps://buildingstrength.org/wp-content/uploads/sites/542/2023/01/muscle-cells-beggs-767x483.jpeg classattachment-homepage-program size-homepage-program alt />			div classoverlay>/div>		/a>	/div>	div classtile>		a hrefhttps://buildingstrength.org/who-we-are/ classdynamic-jazz-animation>			span classtile-title>span>Who We Are/span>/span>			img decodingasync width767 height483 srchttps://buildingstrength.org/wp-content/uploads/sites/542/2022/12/NM-NY-MARATHON-2022-11-767x483.jpg classattachment-homepage-program size-homepage-program alt />			div classoverlay>/div>		/a>	/div>	div classtile>		a hrefhttps://buildingstrength.org/community/advance-research/ classdynamic-jazz-animation>			span classtile-title>span>Advance Research/span>/span>			img loadinglazy decodingasync width767 height483 srchttps://buildingstrength.org/wp-content/uploads/sites/542/2022/12/NM-Families-Final-2022_7-2-copy-767x483.jpg classattachment-homepage-program size-homepage-program alt />			div classoverlay>/div>		/a>	/div>		/div>	/div>					/section>section classcallouts callout-num-1 video-callouts  has-embed-on-the-right >		div>		div classcallout>							div classinner-container>				h2>You Can Make A Difference/h2>				p>Nemaline Myopathy (NM) is a rare muscle disease that affects all the skeletal muscles in the body, causing muscle weakness.br>br>NM varies greatly in severity, from mild symptoms to premature mortality. It does not affect brain development or cognitive function. Currently no Nemaline Myopathy treatments or disease modifying therapies exist, but A Foundation Building Strength is working aggressively to change this./p>												div classcallout-button>						a hrefhttps://buildingstrength.org/community/about-nemaline-myopathy/ classbutton>Learn More/a>					/div>							/div>							div classcallout-embed>				iframe loadinglazy width700 height394 srchttps://www.youtube.com/embed/aM7nj-3FSHE?featureoembed allowfullscreen>/iframe>			/div>		/div>	/div>/section>!-- .callouts -->		section classhomepage-blog >			div>													h2>						a hrefhttps://buildingstrength.org/blog/>						On the Blog						/a>					/h2>								div classblog-posts>											article idpost-3912 classpost-3912 post type-post status-publish format-standard has-post-thumbnail hentry category-news>															div classblog-image-container>a hrefhttps://buildingstrength.org/blog/sunshine-and-grit-the-unstoppable-force-of-kaitlyn-and-jackson-schara/>img loadinglazy decodingasync width720 height312 srchttps://buildingstrength.org/wp-content/uploads/sites/542/2025/12/MarathonEmailLoveLiv-9-720x312.png classattachment-blog-event-volunteer size-blog-event-volunteer wp-post-image altSunshine and Grit: The Unstoppable Force of Kaitlyn and Jackson Schara srcsethttps://buildingstrength.org/wp-content/uploads/sites/542/2025/12/MarathonEmailLoveLiv-9-720x312.png 720w, https://buildingstrength.org/wp-content/uploads/sites/542/2025/12/MarathonEmailLoveLiv-9-300x130.png 300w, https://buildingstrength.org/wp-content/uploads/sites/542/2025/12/MarathonEmailLoveLiv-9-768x333.png 768w, https://buildingstrength.org/wp-content/uploads/sites/542/2025/12/MarathonEmailLoveLiv-9-750x325.png 750w, https://buildingstrength.org/wp-content/uploads/sites/542/2025/12/MarathonEmailLoveLiv-9-450x195.png 450w, https://buildingstrength.org/wp-content/uploads/sites/542/2025/12/MarathonEmailLoveLiv-9-100x43.png 100w, https://buildingstrength.org/wp-content/uploads/sites/542/2025/12/MarathonEmailLoveLiv-9.png 900w sizes(max-width: 720px) 100vw, 720px />/a>/div>															header classentry-header has-image>																	a hrefhttps://buildingstrength.org/blog/category/news/ classpost-category-link>span classpost-category>News/span>/a>									h3 classentry-title>a hrefhttps://buildingstrength.org/blog/sunshine-and-grit-the-unstoppable-force-of-kaitlyn-and-jackson-schara/ relbookmark>Sunshine and Grit: The Unstoppable Force of Kaitlyn and Jackson Schara/a>/h3>																	div classentry-meta>									span classposted-on>time classentry-date published datetime2025-12-09T01:00:00-08:00>December 9, 2025/time>time classupdated datetime2025-12-10T07:33:37-08:00>December 10, 2025/time>/span>								/div>!-- .entry-meta -->							/header>!-- .entry-header -->							div classentry-content>								p>Announcing the inaugural recipient of the AFBS “Strength in Action” Award. If you scroll through social media, you might stumble upon a video of a toddler with mischief in his eyes and an infectious smile, perhaps insisting–with the vocabulary of a child twice his age– that he needs to go to Waffle House. This is…/p>								a hrefhttps://buildingstrength.org/blog/sunshine-and-grit-the-unstoppable-force-of-kaitlyn-and-jackson-schara/ classbutton tertiary aria-labelRead more of Sunshine and Grit: The Unstoppable Force of Kaitlyn and Jackson Schara>Read More/a>							/div>!-- .entry-content -->						/article>!-- #post-## -->												article idpost-3858 classpost-3858 post type-post status-publish format-standard has-post-thumbnail hentry category-events>															div classblog-image-container>a hrefhttps://buildingstrength.org/blog/team-afbs-nyc-marathon-recap-building-strength-one-mile-at-a-time/>img loadinglazy decodingasync width720 height312 srchttps://buildingstrength.org/wp-content/uploads/sites/542/2025/11/MarathonEmailLoveLiv-6-720x312.png classattachment-blog-event-volunteer size-blog-event-volunteer wp-post-image altTeam AFBS NYC Marathon Recap: Building Strength, One Mile at a Time srcsethttps://buildingstrength.org/wp-content/uploads/sites/542/2025/11/MarathonEmailLoveLiv-6-720x312.png 720w, https://buildingstrength.org/wp-content/uploads/sites/542/2025/11/MarathonEmailLoveLiv-6-300x130.png 300w, https://buildingstrength.org/wp-content/uploads/sites/542/2025/11/MarathonEmailLoveLiv-6-768x333.png 768w, https://buildingstrength.org/wp-content/uploads/sites/542/2025/11/MarathonEmailLoveLiv-6-750x325.png 750w, https://buildingstrength.org/wp-content/uploads/sites/542/2025/11/MarathonEmailLoveLiv-6-450x195.png 450w, https://buildingstrength.org/wp-content/uploads/sites/542/2025/11/MarathonEmailLoveLiv-6-100x43.png 100w, https://buildingstrength.org/wp-content/uploads/sites/542/2025/11/MarathonEmailLoveLiv-6.png 900w sizes(max-width: 720px) 100vw, 720px />/a>/div>															header classentry-header has-image>																	a hrefhttps://buildingstrength.org/blog/category/events/ classpost-category-link>span classpost-category>Events/span>/a>									h3 classentry-title>a hrefhttps://buildingstrength.org/blog/team-afbs-nyc-marathon-recap-building-strength-one-mile-at-a-time/ relbookmark>Team AFBS NYC Marathon Recap: Building Strength, One Mile at a Time/a>/h3>																	div classentry-meta>									span classposted-on>time classentry-date published datetime2025-11-11T10:40:33-08:00>November 11, 2025/time>time classupdated datetime2025-12-08T00:29:20-08:00>December 8, 2025/time>/span>								/div>!-- .entry-meta -->							/header>!-- .entry-header -->							div classentry-content>								p>On Sunday, November 2nd, as tens of thousands of runners took to the streets of New York City, five dedicated athletes wore the AFBS logo with a profound sense of purpose. 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Domain > buildingstrength.org

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Port 443